PBC research

[Joanneconnor]

Does anyone know if there’s any PBC research happening, I would like my identical twin sister and myself to help as we both have Hashimotos thyroidosis and my sister was diagnosed with type 1.5 diabetes a year ago now me with PBC, we are already taking part in research to why she has diabetes and I don’t

[gwillistexas]

Joanneconner...search clinicaltrials.gov

[gwillistexas]

My NP had mentioned there are clinical trials going in DFW area, Shreveport, LA, Houston & Liver Institute in San Antonio.

[Hidden]

If your looking for genetic reasearch, contact the PBC Foundation. I’am sure they will be aware of any studies, still recruiting, especially as your twins. I joined the genetic study some years ago and it was from their bear facts magazine I read about it.

[butterflyEi]

Hi Joanneconnor I am pretty certain these people are still looking for contributors

medgen.medschl.cam.ac.uk/re...

this may not be the correct page but there is a contact section where you can email if you would like to.

Not sure where in the world you are but the PBC Foundation may be able to point you in the direction of active research.

[Joanneconnor]

Thankyou

[GrittyReads]

Why not ask the advisors at the 'PBC Foundation'? They run this site, here on 'Health Unlocked', and specially for all people with PBC. Their Founder, Collette Thain, developed it years ago, when there was almost no help or info around, for those who had it. The PBC Foundation is UK-based, and you may need other contacts depending where you are, but I'm sure the 'PBC F' could help with that. They work alongside the leading PBC Specialists and researchers in the UK, and their site has so much up-to-the-minute information. The link to their ste is at the top of the page.

[Joanneconnor]

Yes I will contact them thanks, I’m uk 🇬🇧

[gwillistexas in reply to Joanneconnor]

Guess I should have asked, lol! The ones I listed are In Texas. That won’t work😀

[Twojer]

Hi

Joanneconnor, where do you live? I also have an identical twin sister. She doesn’t have Hashimoto’s or PBC. However she has aneurysms.

Linda

[Joanneconnor in reply to Twojer]

I lice near Liverpool, ohhh were they interested in you taking part Twojer?

[Susanlynch]

Yes all over look up u s clinical trials I participate in U C DAVIS RESESRCH they help you get there and back