Newbie with PBC and probable AIH overlap

[Sona_akb]

I’m a complicated case positive for both AMA and ANA and negative for SMA. LFTs are high( AST,ALT *4 ULN and ALP *2 ULN). I haven’t any symptoms and discovered lab tests incidentally.

I’m 31y/o and just wish I could write here 10years later and say I’m still feeling well.

[Gilz1702]

Hi. All I can say is stay positive and don’t let it rule your life. I was diagnosed 12 years ago incidentally at age 32. Thought I was going to die. On one hand wish I’d never found out but on the other I’m glad I started treatment early as now I’m still well, have no symptoms and live my life. Good luck

[Sona_akb in reply to Gilz1702]

Thanks alot dear. If you don’t mind,Can I ask about your stage at the moment?

[Gilz1702 in reply to Sona_akb]

Stage 2-3 On URSO and recently ocaliva as bloods all remained slightly elevated over the years. Although I’ve only been diagnosed 12 years my bloods were elevated in my first pregnancy 18 years ago and nobody looked into it. It was the only time I had the dreaded itch so am convinced I have had PBC for many years.

[Dodo8]

Hi!

I was diagnosed 26 years ago at the age of 33, PBC and AIH overlap. I still work, live my life. I take Urso and Immuran.

We can survive, we are great survivors! Be positive!

[Sona_akb in reply to Dodo8]

Really?? I can feel alot better now. Thank you ❤️❤️❤️

[Skypony in reply to Sona_akb]

Yes Sona_akb, there are many of us in our 50s, 60s and 70s who have remained well, so you can be very encouraged! What meds are you taking? X

[Sona_akb in reply to Skypony]

Thank you 🙏🏻 that’s very kind of you to take your time explaining for me❤️❤️❤️ I’m so worried and feel can’t continue normal life. I was managing to have my first child next year but now I’m so confused. I don’t want to die when my child still needs me

[Dodo8 in reply to Sona_akb]

Don't worry! You'll be there when you are needed your child! I've brought up my child, she was 6, when I was diagnosed and now I help her with my first granchild!