Diagnosed last year with PBC. ALP was 755 and after a year on Urso only down to 540; been checked 3 times since diagnosis. Dr. is talking about adding Ocaliva. His words were "I don't want to bankrupt you but..."
I have health insurance (medicare and supplemental insurance) but am still concerned that insurance won't come close to covering the $84,000 yearly cost. Wondering if anyone in the US knows of a medication assistance program which will help cover the costs. Also wondering what others in the US are paying for this medication. Pharmacy couldn't give me any idea of cost with my insurance...but the look on the pharmacy clerks face was priceless when she looked up the cost Ocaliva.
Thanks.
Written by
kp1234
To view profiles and participate in discussions please or .
Your dr should be familiar with Interconnect Services. He will have to contact them. They help you be able to get Ocaliva. They are wonderful people & will definitely help you. I couldn’t have gotten Ocaliva if it weren’t for them. They help those who have no insurance & those whose insurance either doesn’t cover or cover enough of the cost.
Contact Ocaliva. They will give you assistance paying for it. They pay for 1/2. Your insurance will pay the other half. I was on it but it made me itch too much so got off of it.
As the previous reply states interconnect was contacted by my doctor and I was signed up for assistance, they are wonderful and I have no copay since I have insurance through my employer. My first prescription of Ocaliva arrives today
I'm on it. When I went to pick up my first prescription, the pharmacist almost fell over. She said "That will be $7890 please". I said there must be a mistake. She said, "no, your insurance denied it.". I told her kindly to put it back on the shelf and I would speak to my doctor. The doctor got the same message, worked with insurance, got it covered and I only had a copay of $42. The drug maker picked up the rest and I now have a zero copay.
My side effects are minimal. More fatigue than usual, a bit more itching, but only once in a while. Some weird rashes/skin eruptions, but nothing I can't handle. I do have cirrhosis, so It's not going to help me much.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Experiences of Ocaliva
Ocaliva
Ocaliva, dosage, elevated cholesterol
Ocaliva and side effects 
