This is me. The first photo was taken before diagnosis
Maybe a year. The second photo I’m down to 10 mgs. My dr said that pbc is secondary to my aih. He’s keeping me on 10 mgs as long as we can. I’m 30 pounds over weight. I fluctuate 3 to 4 pounds. I got a fit bit to help me with moving around. I took photos almost every week of my moon face. How close do you think I am to normal
Look at you. 😍 if you had your hair down in the second pic and were smiling it wouldn't look too much different.
Probably you notice it more. I have a friend in stage 4 bone cancer 😕...shes on steroids. Her face is really really round and puffy. You don't look anything like that at all Jenny. I mean it.❤
How are you feeling?
Your kind my friend. This photo was taken on the way back from Mayo. I do have a second neck. I hope that your friend gets well. I’m ready to go buy a boat to get out of the house more. It’s really hard for me to get out lately.
Wow, a boat? How nice. I'm not exercising at all. Man, do I need too. I really need to lose weight. I have mild fatigue. I'm a terrible couch potato! 😕
I'll ask about igg. I don't know what that is but I'm waiting on results of GGT. I don't know what that is either but was told that it has to do with the liver.
Your face doesnt look much different your hair looks different in the 1st photo and you are smiling that makes a difference
My eyes are really not the same. But thank you very much. I probably should of used a different photo. That photo was taken driving back from the Mayo. We got to the Mayo at 3am and my blood draw was at 6:30 and my dr apt was 11 I think. We bought an rv because the last time I went to the Mayo the hotel wasn’t in good condition. We changed rooms and that room wasn’t much better. Some days are different really. Some days my face and neck are very swollen and my eyes are always a give away. Prednisone saved my life. I can’t say anything bad just that it has bad side affects
I agree with Ballymahon2...
You are still pretty...problem is the latest photo looks like you are feeling crabby. Take another one and smile...I bet you'll be as pretty as ever!
Pam
My jeans don’t fit honey. I was at Kohl’s trying on a pair of Jennifer Lopez jeans. I walked out of the dressing room. I was so happy that the size 12 fit loose. I wanted to show my daughter for her opinion. I stopped to look in the bigger mirror and this nosy beoch that was more than 35 years old said to me: that I was going to regret my butt implants. I almost cried. My word she was old enough to know better. She said that in time they go south like everything else. She was so lucky that my day was ok. I bought the jeans and went across the street and rejoined La fitness. I went from a size 8 to a 12 in Jennifer Lopez women’s jeans. But a gap store size 12 won’t fit. I get them up but no luck zippering. I know to much inflammation. You’re the first person in a year that told me I was pretty since my diseases hit. Two people told me that if someone didn’t know me they wouldn’t guess that I put on weight and have moon face. I can’t be mad at prednisone because I made the choice to stay with it and it is working so far.
Forgot those people who have no business commenting on your appearance. They should reflect & look into the mirror. The most beautiful people are the ones who are beautiful on the inside. You are beautiful! Tell yourself that every single day, on the inside & out! Don't let anyone tell you otherwise. Hugs!!!
She had issues. But I am so much of a karma believer that I didn’t say anything to her. Also there are so many women in our group that doesn’t have the time to keep up with their dark roots and some of us pack on so much makeup and foundation to cover up our own blemishes that I didn’t say anything to her. I thought that maybe she was picking on my rear cause she was having a bad hair and makeup day. She was thin though. But oh well right
Thin is not necessarily attractive! 😉 I am glad you are handling it so well. That was just rude.
I handled it well in front of her but when she wasn’t there anymore I regretted not pulling out my Italian Irish arsenal. But at the end of the day all of my blood work came back perfect and that means more to me than being accused of having a fake rear. I did google it and I do see how she could of assumed my Butt was fake but to say it at her age, she should of known better. High dose prednisone is saving my life. It’s affecting my appearance but I’m alive because of it. I get to be with my granddaughter and I got my rv and I get to take trips. I learned not to judge and I learned that organ transplant is a big deal. I learned that just because someone looks good on the outside doesn’t mean they are fine on the inside. I learned a lot. I still want my previous body back. I always picked on that body but I will take it back if I could and never pick on it again. It’s not possible to get it back in the same condition.
Happy that your labs were good👍 may I ask what stage you are?
I’m very early according to my biopsy. He said stage 1. I believe in April I will have a fibroscan
That’s great! Happy for you 😊
What that girl said was rude, but in a way it was a back handed compliment. Now its fashionable and considered better to have a bigger bottom. So if she thought they were implants she would have been jealous if you'd said ' actually its all mine, the bigger the berry, the sweeter the juice'. J lo, the kardashions all have big bottoms. So although she sounded mean, it was probably envy!!!
Gap clothes are a smaller fit, most brands differ, go by fit not size. The label can be cut out!!!
I see so many young women wearing really tight jeans, with enormous bums, when I was a teen I did everything to hide my big bum!! I was born in the wrong era!!
Always remember words are just words. They can't do you damage if you don't let them. As long as your family and friends love you, and you try to love yourself all is well!!
Take care, good news about blood results.
E x
The moon face will go away after you are tapered off the Prednisone. I don't remember how long it took. If weight gain is a concern, then you will need to work on that by watching what you eat. They say it never goes away, but it will.
By the way, I was diagnosed w/AIH in 2011. DX w/PBC in 1991. My LFTs went through the roof and after a liver biopsy, I was on Pred & Azathioprene (Imuran) for months. Tapered off the Prednisone just fine, but relapsed as soon as I tried to get off the AZA. I looked like the Michelin man and called them my little poison pills, but the doctor said the Prednisone saved my life. I will be taking the AZA the rest of my life, but I'm 80 so I'm not really worried about that. Funny thing, the AZA is an immune suppressant drug, but I never get sick like everyone else.
Hi Jennyhadenough, u are pretty, just need to smile like on the first photo 
Your face looks good, I definitely wouldn't be able to tell that u're on pred.. and it will definitely improve once u're off it. Don't worry, stay strong and positive P.S. Great news about u'r labs!
Gosh I had to delete many selfies before excepting that one
Ocaliva and weight gain.
New to the group but not PBC. 
Finally have a diagnosis. 
results and questions
Loose bowels on Urso. How long does it last?
