Confirmed diagnosis!

[Emer1986]

So, it's confirmed. I've stage 1 PBC! Doc has said there's no real damage to ducts or liver! I feel great with no symptoms!! Pretty bummed though! Never thought I'd be talking about my life expectancy aged 30!! 😟 Suppose should feel happy Iv found it early! Just scared for what the future holds for me!

[Sylvia1968]

Hi am scared for future too dnt no what to expect or do they've never told me anything about stages though but all ask

[Emer1986 in reply to Sylvia1968]

Did u get a liver biopsy? That was the only way I was diagnosed and staged! High LFTs but no symptoms and negative AMA and all mris and ultrasounds were clear!

[Oidra]

Just to give you hope. I am 76. I have 8 grandchildren . Ive travelled all over the world and for the last 3 years have had to look after my husband who has had serious health problems. My P B C is under control and I enjoy life.

[Emer1986 in reply to Oidra]

That's great to know. What age and stage were u when you were diagnosed?

[Brummi]

Hey!. You have plenty of life left in yet. Illnesses affect people in different ways. Just a few lifestyle changes and you will still get that telegram from the Queen when you get to be 100. Stay positive.

[Emer1986 in reply to Brummi]

Thanks Brummi! Would there be any specific lifestyle changes that u recommend?

[Brummi in reply to Emer1986]

Hi, Lifestyle changes depends on a few things like what meds you are on, keeping stress levels down and if you feel fatigued have a rest for a short while. There are certain foods I cannot have as they affect my anti rejection meds. I had my transplant three years ago and as a 68 year old I feel good. Don't look for problems but deal with them as they occur. There is plenty of good people on here for support if you need them and the administrators are brilliant. Take care.

[Oidra]

Emer 1986

I have no idea what stage I am and have never wanted to know. I have never had a biopsy

either. I was actually told I had PBC when I was 60 but in my early 40`s I was refused as a blood donor. I never bothered to find out why, too busy. So I don't actually know when PBC started which doesn't really help you.

I would only say to you that no one knows what is round the corner, either for you or your family so get out there and enjoy every day.

[Chazzy]

I'm 31 and been doagonised about 6 months now also very early stages. Worried a lot to start with about my prognosis but now I don't think about it. I can't. Need to keep positive and looking at all the wonderful things life has given me xx