Just to inform you that PBC will now be known as Primary Biliary Cholangitis.
There are many people round the world who worked hard to make this happen but there is much to be done to now publicise the change.
Our new (coincidental) website will be live very soon; our new leaflets will be available, also. Our new Compendium will also cover a little about the name change.
I know not everyone was in favour but the vast majority of patients, patient advocates, health professionals, and industry professionals were very much supportive of this progressive step.
There is a paper being written and sent to the major hep and gastro journals informing them of the change and to edit any forthcoming papers.