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PBC Foundation
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New treatment for liver disease?

Hi All

Came across this & thought I would share.  Interesting & hopeful. At the very least it shows that research is ongoing.

ucsf.edu/news/2016/06/40313...

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oldestnewest

Hi Lisa. You and Aussie05 seem to have picked up on the same news (albeit different sites). Definitely looking good for the future!

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Note to self: check earlier posts before posting "news" 😉

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At least people get 2 different summaries - one possibly more detailed and the other mainly headlines. Better 2 than none!!! Well done on picking it up in the first place. Adele

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Hello LisaC22.

Though some of the article is a bit too technical I did get the gist of it.

Hopefully in future if this is adapted patients will be spotted before they reach the cirrhosis stage as I think from reading the article it wouldn't be suitable then. I don't know at what stage in PBC fibrosis is supposed to be but I think that is what the article is stating.

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Hi Angela, here is a link to the Pbcers.org's "PBC Disease Stages" site - it explains where 'fibrosis' sits within the PBCstages.

pbcers.org/about-pbc/stages...

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Hello DianneS.

I had a look through the link. When I filled out a survey on British Liver Trust about PBC several years ago now, they staged it in simpler terminology but inflammation was one, as was fibrosis.

The one thing that did stand out was that some say they have a negative for AMAs (antibodies) and some say they've not got a high enough number so the diagnosis is questionable. Seems that the stages in the table do somehow explain this but though it isn't cast-iron. (I was obviously diagnosed after I had the AMA check but I was symptomatic.)

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Thanks for posting this article! Very interesting.

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LisaC22, your article is definitely a more upmarket version of the story! Good find.

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