New treatment for liver disease?: Hi All Came... - PBC Foundation

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New treatment for liver disease?

LisaC22 profile image
8 Replies

Hi All

Came across this & thought I would share.  Interesting & hopeful. At the very least it shows that research is ongoing.

ucsf.edu/news/2016/06/40313...

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LisaC22 profile image
LisaC22
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8 Replies
AdeleMalcolm profile image
AdeleMalcolm

Hi Lisa. You and Aussie05 seem to have picked up on the same news (albeit different sites). Definitely looking good for the future!

LisaC22 profile image
LisaC22 in reply toAdeleMalcolm

Note to self: check earlier posts before posting "news" 😉

AdeleMalcolm profile image
AdeleMalcolm in reply toLisaC22

At least people get 2 different summaries - one possibly more detailed and the other mainly headlines. Better 2 than none!!! Well done on picking it up in the first place. Adele

Hello LisaC22.

Though some of the article is a bit too technical I did get the gist of it.

Hopefully in future if this is adapted patients will be spotted before they reach the cirrhosis stage as I think from reading the article it wouldn't be suitable then. I don't know at what stage in PBC fibrosis is supposed to be but I think that is what the article is stating.

in reply to

Hi Angela, here is a link to the Pbcers.org's "PBC Disease Stages" site - it explains where 'fibrosis' sits within the PBCstages.

pbcers.org/about-pbc/stages...

in reply to

Hello DianneS.

I had a look through the link. When I filled out a survey on British Liver Trust about PBC several years ago now, they staged it in simpler terminology but inflammation was one, as was fibrosis.

The one thing that did stand out was that some say they have a negative for AMAs (antibodies) and some say they've not got a high enough number so the diagnosis is questionable. Seems that the stages in the table do somehow explain this but though it isn't cast-iron. (I was obviously diagnosed after I had the AMA check but I was symptomatic.)

Belliver profile image
Belliver

Thanks for posting this article! Very interesting.

Aussie05 profile image
Aussie05

LisaC22, your article is definitely a more upmarket version of the story! Good find.

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