Do you all ever suffer....: From pain during... - PBC Foundation

PBC Foundation

9,484 members8,377 posts

Do you all ever suffer....

JennyCville profile image
13 Replies

From pain during the night? Last night I was unable to get comfortable to sleep, just felt achy all over, and my liver was aching horribly. Any suggestions?

Written by
JennyCville profile image
JennyCville
To view profiles and participate in discussions please or .
13 Replies
Yvonnejulie profile image
Yvonnejulie

I do take tramadol which helps with the achy but I tend to wake up in the night with pain, I normally have a actimal or milk to settle my tummy back down.

Shaehudy profile image
Shaehudy

I have the same problem. I haven't found anything I can get to work. If you do let me know please! Thank you. An sorry

Jude1 profile image
Jude1

Dear jennycville Sorry to hear your news. I think most of those with PBC have this problem I know I do. My sleep pattern isn't good anyway but the ache down my right side and pain is sometimes unbelievable. The aching all over is a problem one never knows what to do with myself. Sorry I can't answer your question. At the moment I'm suffering from a cold my throat is so horrid although it would have been worse without the flu jab.

Take care keep smiling.x

coutryquine profile image
coutryquine

Learning form of mindfulness to help sleep from CD obtained via hospital physio helped me. Been through years of broken sleep when pain killers wore off and tried pillows between knees and under calves to limited success. Downloaded CD to MP3 player to listen to until mastered technique and has really helped me getting back to sleep and my body back into sleeping habit. I have passed to others who say also helped them. A low dose anti-depressant can also help pain at bed time but long term its the mindfulness helped me the most. Only draw back often woke up and MP3 player was stuck to my other halfs back or worse - oops! Shows I definitely fell asleep then.

Twill profile image
Twill

Hi Jenny

I too suffer from aches and pains and it was worse when I laid on my right side. I bought a mattress topper and swapped sides of the bed with my husband and it helped a little. I take 1 X 10mg amitriptyline and put lavender oil on my pillow, I find this does help me sleep. Pure lavender oil is brilliant and I cannot recommend it enough but only use a couple of drops on your pillow if you r going to try it.

Hope this helps. Tricia x

Gioielli profile image
Gioielli

Hi Jenny, I too used to suffer from pain in shoulders, hips and liver. Started taking 1000mg of Krill oil in the mornings about 3 months ago and, hey presto, all pains are much better and practically non-existent! That's my suggestion. X

Michiganpbc profile image
Michiganpbc

I am finding more restful nights and a decrease in pain with Elavil 20 mg at night it is used for many things pain depression anxiety insomnia, I was reluctant at first to start taking it but I was in so much pain and not sleeping I had no other option.

My liver doctor said it is very safe for me to use so I am glad it's not harmful for me and so far seems to help.

Shine1 profile image
Shine1

Hello,

I'm in the same boat as you, especially with the right side liver area pain, find I cant sleep on it.

Usually staying on the left helps a bit. Sometimes I will do a guided meditation online for encouraging sleep.

If I'm having stomach and liver pain or indigestion, peppermint oil often helps with digestion. X

Gemmatia1 profile image
Gemmatia1 in reply toShine1

Hi thankyou for your note I have been in awful pain over a few days worse on night so lack of sleep the indigigesion is unbarable living on milk and rennie will buy some peppermint x

Shine1 profile image
Shine1 in reply toGemmatia1

Hi Gemma,

Sorry to hear that, horrible isnt it.

Yes, peppermint oil eases off low-level indigestion for me, most of the time. Sometimes have chamomile and spearmint tea too.

I've not done one for years, but you could write a food diary, when you are able to eat a bit again.

Hard to know what's stomach discomfort and whats liver-related isnt it.

Either way, I do empathise! Hope it eases off a little soon x

Shine1 profile image
Shine1 in reply toGemmatia1

PS welcome to the forum. Have found it really helps reading peoples experiences who get what you're going through x

Wilmahair profile image
Wilmahair

Would appear we all have the same aches and pains. I am currently using Tarvin 10 at night and one low dose gabapanton as well as phenergan. I also currently use an oil that i can't/won't go into online but find it the most effective. Sometimes i think pain meds are just placebos as they are so ineffective. Just knowing i am not alone helps heaps. Thank you every one for sharing as i it has also given me ideas.

Gemmatia1 profile image
Gemmatia1

Hi I have just joined. I have had awful very painful intergestion and I take750mg of ursodeoxycholic I have been digonosed from July 2015 is this normal very painful.

Not what you're looking for?

You may also like...

To all those who live in sunny climates all the time do you suffer with the itch caused by PBC?

I was diagnosed with pbc ten years ago, a year after first had the symptoms and have suffered with...
littlemo profile image

so what DO you do for the itch?

Friends..until the other night, the itch had alluded me and I was very, very grateful. Now, for the...
JennyCville profile image

Does anyone else suffer from hot flushes?

Started these about 18 years ago and thought it was the menopause (about 40 at the time). Been on...
Gioielli profile image

Hi to you All,

In January 2011 I was diagnosed with PBC. After visiting the liver clinic at the Queen Elizabeth...
Brummi profile image

What would you do?

I need advice and opinions are very welcomed!! So I recently started a Part time job on top of...
JessiG19 profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.