I haven't been officially diagnosed with PBC yet, but I have something autoimmune going on, either PBC or something else. I live in an area that has had a bad winter this year and my hands and feet are always cold, and I'm cold a lot of the time. I used to be able to stay up late a night and still go into work and make it. But now I find if I stay up much past 10 pm I can hardly get out of bed in the morning. I'm so tired today that I can hardly face the day head of me and I still have another 8 hours to go. I don't know how much of this is disease or just not wanting to be at work. On Saturday, I woke up the same time I always do during the week, but I felt good all day, went places, etc. I still had to be in bed by 10, but I had enough energy to keep going all day. I know this is a part of PBC, but is kind of bumming me out. I'm only 44 and I have a higher stress job in the banking world. I know my employees think I'm a wimp when I just can't get to work on time some mornings. I have a staff of people all younger than me, save one, and the one older than me seems to have way more energy. I've never been a high energy person, but this is crazy.
I don't want to live like this the rest of my life. Does this get any better on the medicine? I know down deep I am worried about stuff that is going to happen, liver biopsy, diagnosis, if I have something worse even than PBC. I'm sure that's part of it. If find myself scanning my schedule a week in advance to see if there is a day I could leave half a day early or take off if I felt too bad.