hi everyone, this is my first time on here so not sure what to say or do. ive had PBC since2008. but had to wait another 6 months before they were able to do anything for me. i have to say that im greedy, my body has decided that i should take every symptom that goes hand in hand with the PBC. things have been getting worse for me over the past 4 months and had another byopsy done last week and have to start getting bloods taken every 3 wks for a while. the pain is terrible and ive been taken off pain killers that helped me cope with it but as you will all know what seems to help you cope is the ones that react badly with the liver. does anyone have nights that they just cant sleep? no matter what i do im getting less and less sleep but am totally shattered all of the time, it just doesnt make sense. hope everyone is feeling as good as they can be.
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