Hi all not been on for a while, I am so confused right now, my mood swings are on over drive I don't want to see anyone or go anywhere my partner cant seem to do anything right I am scared in case I am driving him away.
The itch is at its worse haven't slept properly for weeks, going in hospital on the 13th for a bile drainage procedure, pinning all my hopes on that as we all do when something new is introduced to us, hoping it has the desired effect and I can start living again.
when I read this back it sounds pathetic,( sorry). but cant do anything to snap out of it, so glad you are all there, people that actually know some of what I am going through.
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Bookworm7
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Scratty, I be praying for you. I hope the procedure will make you feel better. I understand, it's got to the point where I have to kind of hold my family back from visits. But it's not the PBC that's my big hindrance, it's other problems. I'm afraid they get hurt at me also. You might be having some depression, and I think I'm getting that way.
Magnolia
It sounds like you are going through a pretty rough time and no sleep with the itch would get anyone down. People can feel low without all the stress and tiredness so you don't sound pathetic at all, just normal :).
I hope the bile procedure is a help and that you can get some of your life back, take care,
I hope the procedure makes you more comfortable and allows your body to get back to a better synch. It maybe the bile problem is upsetting the works. Reassure your partner of your love. I hope this settles very soon for you.
Hi Scratty, Life sounds so tough, I have had many a rants on here about feeling just done in, pretty depressed etc. I started to take citalopram, took a while to kick in (4 weekish) but has taken the edge of the complete sadness that i was feeling. I think for all of us having to cope day to day its to be expected that we have mood swings and plain old depression. Ask the GP to help, it may mean another pill, but hayho if it helps grab it. Good luck with the drainage too, it may help the itch x
i hope you ask for a very strong steriod cream from your doctor for that itch. there is nothing over the counter that ever helped mine. my itch kept waking me up. is last thing you need. after starting urso and the steroid cream, my itchy patch went away (*it was probably the bile*--jackF). a little comes back every few months, usually when i eat something i shouldn't but a little steriod cream and it is gone for a good while. I hope everything goes well for you.
Thank you all for your support it is truly the best thing to hear from you all knowing you know exactly what I mean.
I have made the decision this morning after another horrendous night that I am going to make an appointment to see the doctor tomorrow, the problem I am facing with that is that I have just moved house therefore a new doctor to explain everything to yet again, can't bare the sympathetic stare and the fact that I know only too well that she will have absolutely no idea what I am on about.
Sorry all sounding really sorry for myself again.
This has crept up on me and has a real firm grip, so close to tears all the time and someone just has to look at me funny to set me off, think I should get under the duvet and stay there.
Once again thank you all for reading and responding. Debbie.
Hi Debbie, I can relate to you complety, I had the itch terribly for months and months, rifapicin is what sorted it out for me. I can tell if I miss a couple of.tablets but it has controlled it. Sadly I'm now on transplant waiting list due to severe bile duct damage and increasing levels of jaundice. I'm 34 with a 6 and 7 yr old . I have good and bad days with how I mentally feel about it all, today I've really appreciated spending time with my family ob a day out and enjoying.the sunshine. Don't beat yourself up for having bad days, I think.we're all entitled to them, just don't let it rule your life and I'm sure as soon as you have the itch under control ( which will.happen) you will feel a different person. Always here if you need a chat Michelle x
I am on today after a long absence (trying not to think about PBC). How are you guys doing? I have been praying for you guys.
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