i was in hospital recently to have my 6 monthly checkup. The registrar I saw tells me that it is very unusual to suffer from body pains with pbc. I thought these pains were part of pbc and she has now totally confused me. She also said my blood results are the worst they have been and wants me to have blood tests on a monthly basis until my next visit in October. I think she is wrong and am sure she is because I have read on this site that others suffer from the same pains. Confused or what!
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