I have pernicious anemia and have a B... - Pernicious Anaemi...

Pernicious Anaemia Society

32,511 members23,809 posts

I have pernicious anemia and have a B12 injection once every 12 weeks.

Lilian15 profile image
6 Replies

I have read that I should be supplementing with folic acid and I have also heard that with PA one should not be takking folic acid. Which is correct please?

Written by
Lilian15 profile image
Lilian15
To view profiles and participate in discussions please or .
Read more about...
6 Replies

Hi,

I believe you should have monitoring of bloods including serum folate and ferritine = iron storage. IF you are then found to be deficient or low in either you will need suplementing. . As all B vitamins need each other to metabolise it is not uncommon to also become def in other vitamins etc when B12 treatment has started. nothing replaces a healthy diet though.

My thoughts anyway,

Kind regards,

Marre.

Lilian15 profile image
Lilian15 in reply to

Thanks Marre. No I am not regularly monitored for ferritin, serum folate. Iron comes with a routine six monthly Ha1Bc and TSH test. My iron is usually at the bottom of the range or just under but it was found that it is an absorption problem rather than an unhealthy diet.

regards

Lilian

Hi Lilian,

Perhaps just ask..I know its weird that monitoring is seldom done, and different people get different monitoring. My GP will not monitor ferritine, so I had it tested privately once.

It is possible that if you have problems absorbing iron this is because your stomach acid is not accidic enough.(called achlorhydria). I assume you know drinking something like orange juice can help uptake of iron? Iron needs vit C for uptake,

See:

achlorhydria

emedicine.medscape.com/arti...

Anyway, your best bet is to ask if you could have folate tested, you never know..

Kind regards,

Marre.

Charistory profile image
Charistory

Perhaps your PA misspoke. Folic acid is necessary for everyday health and red blood cell reproduction. If you menstruate, are pregnant, or nursing, or have lost blood through injury, you need even more than usual. Overdosing on bioavailable folate would be difficult as B vitamins are water soluble. To do so you’d have to be not drinking enough water and taking huge doses of folate. So if I were you, I’d look at the consensus elsewhere, take Actifolate by Metagenics which has two form of bioavailable folate, and drink plenty of water to your health. Bioavailable simple means it is in the form your body uses and no chemical conversions by the body are necessary for you to begin using it.

livestrong.com/article/5075...

webmd.com/a-to-z-guides/fol...

ext.colostate.edu/pubs/food...

Cheers,

Charistory

Charistory profile image
Charistory

Have you asked your doctor about the benefits and independence of taking B12 (methylcobalamin) sublingually? The B-12 dissolves under your tongue going directly into the bloodstream into the capillarries through the thin tissue without a shot. You could take it daily yourself and place your own orders on line. It would eliminate painful shots, commutes to the doctor, and save time so he/she could serve other patients. Such efficiency sounds like it would cost less too. This is what my ND (Naturopathic Doctor) does with me. A three month supply of sublingual B12 methylcobalamin (120 tabs) costs under $10.

Sublingual B12 works for some..very well even...for others it does nothing, .. its allways worth a try! I tried ( and high dosis of B12 tablets as 1to 2% is suposed to difuse naturally in the gut even if you have autoimune PA, but neither did anything, no raising of my serum B12 either..But it works for some and is a much nicer way to get your B12!!

Not what you're looking for?

You may also like...

Pernicious Anaemia-Starting B12 injections and folic acid

Hi, Seen my GP yesterday to discuss recent blood test results and my GP is starting my B12...

I have pernicious anaemia and receive injections every eight weeks, blood tests showed I was low in folate and was advised to eat green veg

I eat green veg, should I take a folic acid supplement and should I take an iron supplement. I tend...

B12 injection and neck rash

I had my initial loading doses in March this year. After 8 days a rash appeared on the back of my...

Can I have PA (pernicious anemia) even with normal B12 amount test results?? I have many of the symptoms!! plz help

Hi im new to this forum but im looking for advice to what im experiencing For the last year and a...

New to B12, do I need a GP appointment?

In June this year I went to the doctors because I hurt my knee running and without any info to why...