Residual neuropathy : Hello. I've been... - Pernicious Anaemi...

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Residual neuropathy

AirAl profile image
5 Replies

Hello. I've been self-injecting monthly to handle my PA for about 6 years now. I still have a little bit of neuropathy in the fingers of my left hand. Has anyone had any success treating that or should I consider it to be permanent at this point? It's not that bad but a few tasks, like buttoning my right sleeve button, are difficult. Thank you.

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AirAl profile image
AirAl
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5 Replies
wedgewood profile image
wedgewood

That neuropathy may well be irreversible now . I have neuropathy in my feet , which makes walking painful , but after 10 years of injecting , I have more or less given up ( but you never know . Some clever scientist may come up with a remedy . )

Best wishes .

Bellabab profile image
Bellabab in reply towedgewood

Indeed & I was heartened to hear that scientists are looking into ways of reversing autoimmune disease by changing genes. I hope they succeed as we know B12D is a killer & type 1 diabetes even more so. autoimmuneinstitute.org/art...

Libuse profile image
Libuse

I agree with Wedgewoid . I have been SI EOD for almost 3 years and still have vague peripheral neuropathy in hands and feet, not to the extent walking affected but vaguely uncomfortable especially when it’s cold. I don’t give up though and no harms done, so I would keep trying 😊

Oneash profile image
Oneash

I guess the only things you can do is take DHA rich omega 3 oil, zinc and all the Bs needed for nerve myelin repair. And do lots of finger stretching exercises.

AtoZ24 profile image
AtoZ24

I read it was a lack of B12 which causes the neuropathy. I have a B12 shot at the surgery every 12 weeks, and my fingertips feel odd-not exactly numb, nor not really tingly, but my phone does not always respond to my touch. I like to sew, so it is very debilitating. If people are injecting every week, how much is used each time?

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