Neuropathy. symptoms: Hello, I have... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,984 posts

Neuropathy. symptoms

Ldhall profile image
6 Replies

Hello, I have posted previously but wanted a little help regarding neuro symptoms.

Firstly I have been getting stabbing sensations intermittently in toes, legs,thigh, also had it it thumb It comes and then goes, the frequency of this feeling is happening more often than before.

I also have been getting cold/wet sensation again it comes and goes just as quick but frequency is increasing, thought I had step in water on my rug I was bare footed, there was nothing there no wet. Usually the wet/cold sensation is more like someone flicked water on my skin legs arms,hand and face.

My b12 was 221 in UK my Dr said because my red blood cells are not enlarged it is not b12, also my memory is not great, I forget what I have watched on TV the night before need prompting, shopping can be hard I forget what I went for. Sorry for the long post ...oh one more thing I have difficulty describing this my feet ...can you imagine being in a club ect with loud music and you feel the vibration/humming sensation of music in your feet I have that nearly constant in left foot,I don't think I described that properly lol, any help welcome xx

Written by
Ldhall profile image
Ldhall
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Gambit62 profile image
Gambit62Administrator

Please draw your GPs attention to the BCSH guidelines on diagnosis and treatment of cobalamin and folate deficiencies which they can access through the BNF but you can access here

onlinelibrary.wiley.com/doi...

key point is that 25% of people who are B12 deficient do not have macrocytosis when they first present - so the absence of macrocytosis cannot be used to rule out B12 deficiency.

as you have neurological symptoms prompt treatment is recommended to avoid permanent damage.

Ldhall profile image
Ldhall in reply toGambit62

Thank you gambit62, do you think my symptoms are neurological, I get confused as they are not constant but the frequency is increasing. X

Gambit62 profile image
Gambit62Administrator in reply toLdhall

what you describe does sound as if it is neurological but it is possible that there may be something that isn't B!2 going on - neurological symptoms are rather tricky.

take a lookat this checklist

pernicious-anaemia-society....

jillc39 profile image
jillc39

I am so interested in your post - I have that sensation of cold water being flicked on my legs at times - and I have never dared tell a soul.... it sounds so weird = so glad to hear from you Ldhall

Ldhall profile image
Ldhall in reply tojillc39

Hello Jill nice to hear from you too, I get the flicked water sensation on arm and hand too, now all my symptoms come and go but the frequency is becoming more. Also I get heat patches feels warming not burning as yet but not warm to touch the skin. What symptoms do you get?

jillc39 profile image
jillc39

oh my yes, Ldhall - burning burning foot and legs, but cold to the touch. nerves playing up from neuropathy?

Not what you're looking for?

You may also like...

B12 neuro signs

Hello everyone, can anyone tell me if they had b12 deficiency with out the pins and needles, I have...
Ldhall profile image

Burning lower legs and feet after B12 injection

Hi After my last B12 injection over a month ago I noticed my legs had a burning sensation in the...
mistygrey profile image

High B12 (>2000pg/ml) but pain returned in feet

hey guys, I have been deficient in b12 (160 Pg/ml) which I got to know in August 2017 although I...
AbdusSaboor profile image

Help with B12 and PA diagnosis? In UK

Hi I am trying to figure out if I have a b12 problem still despite the 12 weekly b12 injections I...
mistygrey profile image

New to the site and navigating confusing symptoms from teh USA

I’m new to this site, 37 and living in the USA. Probably like many of you, I’ve found this site...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.