The proverbial has hit the proverbial.

[Laverdista]

An update...

You're all no doubt aware if my many previous posts about my experience with horrible agitation and anxiety during 'reversing out'. I've been self-injecting for 3 months now. My GP has actually told me to stop my injections for a month, as she believes the i jectuons are responsible for the adrenaline surges and very high blood pressure readings I've had. Personally, especially as I am getting nearer to the 4 month mark when things COULD start easing (although may not), I'm reluctant to do this, as even one injection a week would be better than none.

However, after an ambulance trip to A&E on Saturday due to scary blood pressure readings (I'm already on 3 medications for it, and the blood pressure had been controlled until I started injections), I'm not sure what to do now.

My excruciating agitation during reversing out has led to truly horrible days of depression, which turned increasingly suicidal in the last 2 days.

Having been seen by the Mental Health Crisis Team for the last few weeks, I've been told that if I have an 'emergency' again, my wife has to ring 999, and I'll be sectioned (detained in hospital for my own safety, for non-UK readers). 😔

To avoid that, and with the realisation that I do desperately need help to get through this, I'm going in to a private mental health facility on Tuesday, for at least 2 weeks, possibly 4. I doubt there'll be any possibility of injecting B12, or taking supplements, but I can at least try to let them allow me a B12 and folate sublingual.

I stopped taking mirtazapine after a week as I had heard so many horror stories about withdrawal symptoms. I'm hoping to take an SSRI but can't until I get the results of a 24 hour urine test for neuroendocrine tumours, which I should hopefully have on Monday. So it's been torture trying to stay in one piece mentally.

I honestly had none of these symptoms before being diagnosed with B12 deficiency, and when I started SI three months ago.

It may well be that in a month's time my symptoms might start to ease a bit, but I don't have the luxury of waiting until then without help, as my mental health has declined so much.

Thanks for all your support so far, and thanks again to Wwwdot and Gobbozoid who continue to offer me daily support and have been my rock.

[Technoid]

I hope you can get the care that you need Laverdista ❤️

[Laverdista in reply to Technoid]

Thank you. 👍

[PlatypusProfit8077]

so sorry to hear that you’re still struggling! I hope the facility and its staff are helpful, kind and compassionate and that you’re able to come out the other side feeling better mentally and physically. I’ll be thinking of you!

[Laverdista in reply to PlatypusProfit8077]

Thanks

[pitney]

All the very best of luck with your treatment, all I can say is print off and take with you as much B12 info as you can and try to get someone there to contact PAS or at least look at their doctors info on the PAS website , be as calm as you can and hope that someone is more understanding of the problem. My thoughts are with you

[Wwwdot]

Hi Laverdista

Great advice for Pitney as stopping and starting B12can bring its own challenges.

We are wishing the very best for you and your family and as PP says hopefully you will come out the other side feeling better.

🤗🤗🤗

[Laverdista in reply to Wwwdot]

Thanks, and thanks for all of your help and encouragement so far.

[Ghound]

Hi, I'm so sorry you're having to go through all this, but getting intensive professional support at the facility will hopefully be a turning point .

It's been difficult to remain positive in the face of both physical and emotional ill health, but keep focused on the fact that there is always light ahead, and it sounds like you'll be getting the correct help now.

We'll all be thinking of you and wishing you all the very best xx

[Laverdista in reply to Ghound]

Thank you. Hopefully will get through this and will start posting positive things at some point in the future. 🙏🤞

[Blueoxo]

Hi Laverdista, I can relate somewhat to what you’re saying. My blood pressure went very high and I felt like I was having palpitations when I started doing my own B12 injections. Initially I was injecting once a month and then eventually increased that to every 3 days. My blood pressure increased and I could hear my heart pounding when I went to bed at night. I got a bit scared by it reduced the frequency to weekly which seems ok. Got to admit I do feel better for it. I’ve never had high blood pressure before, usually the opposite if anything. I figured it must have been caused by the increased frequency of the B12 infections.

[Laverdista in reply to Blueoxo]

Thanks. I stopped injections completely a week ago (functional GP told me to stop all injections and other supplements until they knew what was going on in via detailed blood tests). However, whilst my agitation has definitely calmed down since I stopped (and my blood pressure has gone down) other symptoms seem to have got worse - I feel absolutely rotten.

[Gillsie54]

I wonder if the injections are causing a sodium / potassium imbalance. Injections at the start can affect this. Perhaps get a blood check on both sodium and potassium levels. These can affect blood pressure.

[ClaireWF1346]

Wishing you all the best best with your recovery.