Just looked at my medical notes as looking for some test result, some idiot doctor has just posted this comment:
History: Having B12 injections 6 weekly - unusually frequent. Notes just say cobalamin deficiency no correspondence to clarify cause, suggest let TW decide if OK to relax frequency to more typical 3/12ly or even suspend?
This GP has just started in my surgery apparently as a gp trainer.
I am so angry that this man can make such a judgement on my life without speaking or even knowing me. Even my gp (TW mentioned in the note) has no idea and has tried to stop my injections before but didn't get very far with that one. He has been told that I don't need my levels checked as I am on treatment but continues to check my levels every blood test he makes me have.
This is what was the message given to him in blood test results back in 2018:
Serum B12 monitoring is unnecessary when patient is receiving parenteral therapy.
I got injections up to every 6 weeks because I literally crawled into my then docotor's surgery begging for more frequent injections and he agreed and put a note on my file to that effect, or so I thought. This was after some uppity nurse tried to tell me that I couldn't have them this frequently and reported it. I had an argument with a locum doctor she reported it to about it, she had to apologise to me.
T
So, I am waiting for the letter stopping me injections.
Written by
pramela
To view profiles and participate in discussions please or .
I can feel your frustration! How dare they indeed. And it's so exhausting to battle them when you're already carefully balancing your physical and emotional energy to enjoy some standard of life. They tried to keep adding a B12 test with my last co-factor bloods and I had to reply to have it on record that I do NOT consent to them taking my blood to test for B12.
I'm not sure if your question was for me...but my surgery uses SytmOnline which allows you to access your patient record (notes), test results, request repeat prescriptions etc. The reception team should be able to advise at your surgery as I think it's common practice for surgeries to have these now.
This is how I check my records. My gp doesn't even write correct records, he never puts in my notes what problem I have seen him about. When I questioned this with the person who deals with this I had to put the phone down on her as she was lying to me.
Why would anyone seriously imagine that we are all the same, just on this one condition, as regards treatment. Any GP must surely have noticed by now that we do not all present in the same state, with the same symptoms or severity of symptoms.
If GPs need training in-house, perhaps the best way to be of value to a practice (and save money) would be for a GP trainer to point this out - and continue a frequency of treatment that maintains an acceptable life quality. Don't mess with success.
Crawling into your surgery would count as "not there yet" regarding life quality, surely - a strong indication that more is required. That should be on record.
If 3/12 was our collective answer to our varied problems, there would be no need for this forum and no-one would need to self-inject. Look in the right-hand column on this page and go down to the heading Topics, subheading All things Pernicious Anaemia Society where there is a survey with results showing how often we think we need B12.
I am sorry that the GP trainer feels obliged to save costs by "relaxing" or suspending your B12 frequency. He should be concentrating on why your GP keeps ordering unnecessary tests for a managed condition. If your notes only say "cobalamin deficiency" without mentioning a cause, isn't that their failing ? More training opportunities required in that area, then !
Suspension of a treatment would indicate that your condition no longer exists: how have they determined this if they have no record of the cause ?
I saw a talk where the speaker (a doctor) explained where the once per 3 months guideline came from. It was based on some math that applies to healthy people and not those with pernicious anemia where the mechanism for recycling B12 is not working. I hope you keep getting all the B12 you need.
Or they are more concerned about following surgery protocols than actually listening to and caring for patients. One (skimpy) size fits all, so goodness help you if it doesn't suit you!
Update: My records, that I checked today, have a note on there from !st November, that they have stopped my 6 weekly injections to now 8 weekly for A YEAR and then they wil be looked at again.
Coded entry Has authorisation for medication under PSD (XaZ08) - MAINTENANCE DOSE: I authorise HYDROXOCOBALAMIN 1mg/ml by IM injection to be administered to this patient once every 2 MONTHS for Vitamin B12 deficiency for 1 YEAR from today (and to then be reviewed by a prescriber).
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Am I missing something?
Soooo confused!
Advice needed
