With my understanding of the medicial field including research I decided to study antibiotics as being appropriate for healing from B12 associated issues and found it unlikely it would have been considered by experts.
Just sharing and I am not going to accept that anyone 'knows' what I should do. I will do more study.
Good news is "The urea breath test is accurate more than 95% of the time. If the test is positive, H. pylori is present. If it's negative, you likely do not have H. pylori in your stomach. " In the medicial field that is rare for their testing. I am just starting my study perhaps they are better when bacteria is involved with testing. Treatment can expected to be based on minimum understanding and maximum profit.
Hopefully I can get the test done privately if that is something I determine is appropriate. I do not experience gastritis and it is likely any medicial personal would be able to think well enough to see it as a possibility treatment might be helpful. They might have the ability, that is not what they do. They are check box monkeys with a fantastic brand and poor product.
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WIZARD6787
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I researched H. Pylori and Small Intestine Bacterial overgrowth about 18 months ago but not in relation to antibiotic use as there are few I can tolerate.
I was unable to identify a SIBO test that was a sensible price and with high accuracy. NHS refused to do one. Research suggested that given my symptoms it was highly probable I had SIBO. So I self treated with herbal antibiotics and diet.
I also researched H. Pylori and again whilst test were far more accurate the cost was high. I concluded same as you that it was probable given my symptoms that it was present. Again NHS refused to do one.
I chose to self treat homeopathically both infections. Within a few months I began to notice a big improvement in my gut - diarrhoea disappear and bloating and cramps reduced. A subsequent change in diet cleared bloating and cramps completely.
Then I had an appointment for a long (2 year ) wait for a colonoscopy and the three day prep meant I could not take my supplements and within 48 hours cramps and bloating came back.
Good news is that my bowel looks great, no polys apart from two area in the small intestine where there is severe inflammation. I will find out shortly what what they think has caused it - SIBO and H. Pylori were mentioned …
If only they had done the colonoscopy before I started to reduce my bad gut bacteria and restore my good gut biome. Sadly the prep for the colonoscopy destroyed all my gut bacteria so I am told so it will take a while to recover.
Good news is I seem to be recovering at an exponential rate compared to at the beginning of my PA as I have a better understanding of my gut and have the supplements to hand!
Good news on the colonoscopy! Good on you for the self treatment.
I have no gut issues and never had any prior to the few months prior to my DX. It did take a while but through supplimetation they have resolved.
I understand that helicobacter-pylori is not associated with B12 other than when accompanied with digestive issues. It does not follow that it is not present in my body.
With my many miss DX of Mononucleosis which I now expect was B12 all along I was prescribed amoxicillin and the issue always resolved. When I had other infections same med same result.
4 times since my DX of B12 deficiency I was prescribed 5 days of Amoxicillin and felt a whole lot better. I also came across that with some people with a recurring illness have it eliminated with a forward thinking doctor who prescribed amoxicillin for a longer than standard length of time and the illness does not recur.
I researched similarly for my own benefit soon after my autoimmune thyroid diagnosis. My continually upset stomach and inability to absorb nutrients from my very healthy diet led me to believe I too had many symptoms of H. pylori and SIBO. I found the books by Izabella Wentz (US pharmacist) very helpful and set about self treatment (non antibiotic), using S Boulardii probiotic , home made L Reuteri yogurt, black seed oil, NAC, L glutamine among other things. Hard to say what worked and if it really did, I still have such a sensitive digestion 2 years on. Better than before but I have to be very careful about dairy, glutens, tomatoes, garlic FODMAPs etc which is such a pain. I’d love to know more but can’t afford to test. Tried the Zoe programme, that didn’t help, diet they suggested didn’t work for me at all, I got fatter, more tired and bloated it was a backwards step 🤦🏽♀️
Yes Isabella Wentz book is in my now very big book pile. I like how she writes - very clear and I like her root cause analysis approach - appeals to an engineer!
I ordered some more S. Boulardi as I had forgotten about those so THANK YOU for the reminder.
Good on you for your successful self treatment!. Thanks for the heads up on Izabella Wentz work.
I am took NAD for 7 days at 700 mg and after 'symptoms' getting a bit more bothersome and extreme emotional distress things leveled out and then I went to 1,400 mg for 2 weeks and am still improving.
I believe the antigen stool test is also reliable >90%. I had one of these after my GP sought advicefrom a haemotologist. She actualky recommended the breath test but I would guess my GP went for the stool test becayse it is cheaper and easier for both parties. You might find this article useful too.
Thank you for that! I looked at the testing and the stool test is 1/2 the price $100.
The stool test can be reliable if and only if certain procedures are followed. That would be a lot of work to establish which company was accurate.
There is always the factor that the doctor thinks in terms of the general population and not the individual paticient as I thought they did prior to dealing with them.
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