Exhausted still after B12 injection.

[Dolly260]

I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again.

I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take.

I did mention it to the nurse when I had my last injection but she didn't seem bothered.

I do take a high dose of vitamin d.

Just wondered if anyone has any ideas on how to not be so exhausted please.

[Nackapan]

Do you think you'd benefit from more frequent b12 injections ?

Csmn you sepetate the symptoms from each condition?

Is your folate,iron ,ferritin 9n last blood test okay? 🤔

A yesr in on regular b12 Injections I too wasn't functioning much.

Also having migraines and taking alot of pain relief.

Hoping with more time you will get better relief

[Dolly260 in reply to Nackapan]

Have no idea if I'd benefit from more frequent injections.

Yes, I can separate them. I'm fatigued from both.

I have no idea what my results are from blood tests, I've changed gp's and had the blood test in amongst that so it doesn't show on my patient records. But from previous blood tests they are normal. I also take folic acid every day because of side effects from methotrexate that I take.

It's just the smallest and simplest of things wipe me out. If the Olympics had a sleeping section I'd win gold all the time.

[Orchard33 in reply to Dolly260]

It was important for me to question and research "normal" results. My researches revealed that my ferritin level, whilst "within range" for the man on the Clapham omnibus was totally not right for me. NHS ranges and "normal" results are part of what we're up against. For hard-pressed GPs numbers are easier to deal with than a person with an individual symptom picture. I recommend that you ask for print outs of your full, historic blood results (not the summary sheets) and go through them with a fine tooth comb consulting reputable websites and mapping the changes. Then draw your own conclusions and act accordingly.

[Dolly260 in reply to Orchard33]

Thanks but I do have my blood results, just not that last one.

Unfortunately due to the medication I take for rheumatoid arthritis my levels are always low and there is nothing I can do about that because the medication causes it.

I haven't had low iron levels for a long time and if I did it would be picked up by rheumatology.

[Hockey_player]

How often are you getting injections? You could try every day or every other day for a little while to see if that helps. A sleep study would tell you if you have sleep apnea. That can make you tired. If you don't want to do that, then there are fitbits that monitor night time O2 sats that can give you an indicator. It would be good to get a complete health work up from your doctor. There are lots of things that can make people tired.