b12 and menstrual cycle : hi all just... - Pernicious Anaemi...

Pernicious Anaemia Society

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b12 and menstrual cycle

Patrice201 profile image
5 Replies

hi all just looking for other peoples experiences with pernicious anemia and the contraceptive pill. My doctor advised me to take the pill for 2 months in a row with a 4 day break after the 2 months before starting again for 2 months that’s because of my b12 deficiency I find after doing this for 3 years I need a break from the pill as my mood has been getting very low

Is there a link with decreasing b12 and your period. Thank you

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Patrice201
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Sleepybunny profile image
Sleepybunny

Hi Patrice201,

I just wondered how often you get B12 injections.

I'm in UK and a lot of UK forum members find they cannot manage on NHS levels of treatment.

A few B12 links that may be of interest

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Has some overseas members.

PAS membership is separate to membership of this forum.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort

(Dutch website with English articles)

stichtingb12tekort.nl/weten...

B12 Institute - Netherlands

Has useful lists of symptoms and causes.

b12-institute.nl/en/home-2/

B12 article from Mayo Clinic in US

The Many Faces of Cobalamin (Vitamin B12) Deficiency

ncbi.nlm.nih.gov/pmc/articl...

Table 1 in above article is about frequent misconceptions about B12 deficiency that health professionals may have.

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper founded PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies.

Films and videos about PA and B12 deficiency

PAS conferences

pernicious-anaemia-society....

Films about b12 deficiency

b12deficiency.info/films/

I'm not medically trained.

Patrice201 profile image
Patrice201 in reply to Sleepybunny

thanks for the info I will have to look into the sites I get it once every 3 months I take b12 tablets everyday but I don’t think they make a difference

Sleepybunny profile image
Sleepybunny in reply to Patrice201

Do you mind me asking which country you are in?

If you're in UK, there's a lot more info I can pass onto you.

Patrice201 profile image
Patrice201 in reply to Sleepybunny

hi I’m in republic Of Ireland I have asked my doctor for more shots but he won’t give me them only once every 3 months. Do b12 tablets help at all?

Nackapan profile image
Nackapan in reply to Patrice201

I tried tablets to help between injections. and they didn't help .

I've obviously an absorption problem as have always eaten a mixed diet full of b12.

You can passively absorb about 1% think.

So a high dose is needed to get anything. 1 -2000mg some take more

push for 2 monthly injections at

See least. See another Gp.

write in

If a member geg PAS involved

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