Just wondering if anyone can help me with the above.
I have been diagnosed with low B12 and folate - currently on daily folic acid and just finished loading does of B12 Injections, will continue to take injections weekly and daily 1000mg sublingual B12.
However, for the past year or so, whenever I look at a computer screen, I get an intense pain in my headache and my eyes become somewhat foggy and blurry.
Has anyone else had this issue? Trying to rule out other factors, such as Anxiety, stress or there being something wrong with my eyes.
I have been for eye tests and they have come back fine, so I am kind of stuck now.
My job is working with computers and it is becoming near impossible to sit down and look at my laptop, it is so weird.
Thanks Guys.
Jack
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Jackwalker0799
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Hi Jack, yes this sounds very similar to some of my symptoms (although I didn't know I had PA for years). I suffered with migraines (with aura) for over 15 years and I thought it was triggered by bright lights - not great when using a computer! But since self-injecting I have not had any of these episodes.
I also found in the 18 months leading up to my diagnosis that I found looking at screen very difficult, but again this has now eased for me, so hopefully it will for you also.
Do you have any problems with Floaters? Small black/grey dots, specks or strings which I find very noticeable when looking at a computer screen - mine I almost cleared up after 10 months of self-injecting.
Have you looked into whether you might have migraine?
Are you getting enough B12?
I had lots of symptoms affecting my eyes and these symptoms improved when I got enough B12.
"currently on daily folic acid and just finished loading does of B12 Injections,"
Did you start the B12 injections before starting the folic acid?
Treating folate deficiency without treating a co-existing B12 deficiency may lead to neurological issues.
Do you mind me asking which country you are in?
Patterns of treatment for B12 deficiency and the type of B12 used can vary between countries so knowing which country you are in can help forum members to post relevant info.
If it isn’t already, set your refresh rate on the laptop to 60Hz, or a multiple of that, rather than 50Hz or a multiple of that.
This will move it away from the UK mains frequency.
I did this for a colleague at work who was having issues. Immediately after, she said she couldn’t see any difference, which was true; but by the end of the day, she was saying the (still imperceptible) change had made the most enormous positive difference.
Sorry, I'm from Australia and I'm not sure what changing the Hz does - I didn't know you could change 'refresh rates' either!?
My partner was really techy (a self-taught music producer & dj) and he was so awesome with all of those kinds of things. He'd always help me and my whole family with all of our technology. He turned 30 in October of last year, but then he died suddenly 2 months later. Very sad for all of us, such a huge loss. He was originally from England and he was really witty & funny. He used to make us all laugh and would brighten our day - every day. Such a nice thing when you're really not feeling very well.
Anyway. Sorry about that. I didn't mean to bring the mood down. I just really miss him, he was my best friend and my carer too...bless him 😞
I don't know if anybody here can help me with this, but Sam was injecting me with B12 (I got the methylcobalamin powder from England too) - and i THINK it was helping. I bought it from that perniciousanemia.org website. But as I say, he then passsed away and so the injecting stopped because I didn't feel well or comfortable enough doing it myself. Then I had to move back to my mum's house too because I couldn't afford to remain renting on my own where we were - so all of my stuff got packed away in boxes, and of course that included the B12 powder as well (sorry for the long story....)
What I'm trying to say is, I had - and still have all of the symptoms that you guys have been discussing here. I'm 48 and I've had all of the proper screening & testing for B12, but as far as I know, my blood tests have never shown low B12 - and nor did any of the other testing show any problems either = ie antibodies or low intrinsic factor or a problem with my stomach’s parietal cells etc
So can I still have a problem with B12, even though all tests have been fine over the years...?
I've had IBD (Crohn's Disease) for over 20 years, but in remission for about 8 months (not active IBD the whole 20 years though).
I'm wondering if it' possible to be B12 deficient - even though all tests come back as 'normal'?? I don't feel well in any way at all, and I have chronic fatigue, nystagmus, tremors, mdds, blurred vision, very poor depth perception, weak arms - and legs that feel like jelly, pins & needles, tetany, a numb area under the LHS of my face, migraine and if I go into a supermarket I pretty much feel like I'm going crazy! If I go to a concert or out to a restaurant etc, I can sometimes have what feels like a bit of a meltdown or I feel really really unwell the next day from the sensory overload. Computers screens are just AWFUL for me. My doctor at the time put me on Valium - because she had no idea what was going on with me or what was causing my symptoms.
I'm also thinking that it could be pre-diabetes or Lyme disease. My Dad had diabetes (he died in June), & my brother also has diabetes. In the past - most of my hormones have back in the normal ranges and so did my blood sugar levels. I've not been tested for Lyme yet though. That's gonna be fun...
Anyway, thanks for listening folks.
I really hope I can feel better/normal one day. I hate living like this, sometimes I don't wanna be here anymore tbh :😞
I am sorry you have had a really bad year, I was also tested for Lyme's, in my case just B12. Crohn's desease is a good indicator for B12 deficiency. It is a good that all your levels are back in normal range and B12 is working.
Hope you continue to get improvements, carry on with B12
"I don't wanna be here anymore tbh" Many of us have felt like that. We have each other,
that helps pull us through the down days. No need to suffer in silence. Do let us know how your getting on.
Australia uses 50Hz electricity like the UK does, so my advice still applies for you. In the US, where the mains is 60Hz, that’s the refresh rate, and multiples of it, that they should avoid.
I don’t know how the change the refresh rate on any particular device, as where this setting is can vary, but you may be able to look it up on the web.
I don’t know which part of Australia you live in; but certainly when we were running out of hydroxycobalamin, on a cruise, a cheerful Aussie pharmacist in Airlie Beach topped up our ampoules, no prescription needed, and on a Sunday too.
Even offered us syringes and needles, though we had enough of those.
We wish that the UK would follow suit; though I do understand that not all of Australia is so liberal.
We were touched by the rest of your post; our condolences.
I am not too bad on my laptop its a mat screen. I am terrible with my desktop which has a glossy screen. Could glare be the reason?
I have to constantly clean my glasses otherwise too much glare bouncing off everywhere.
The other thing is with supermarkets and outside places. Everything is built cheaply with nothing to dampen the sound or light. And shops are jam packed with stuff. Went to superdrug yesterday and in a dark spot they had the vitamins. Couldn't read a single one. Had to ask a woman who sat on the floor looking at the same spot for 10 minutes.
my daughter has PA but also.been diagnosed with Irlens syndrome. Speak to.a specialist opthalmic clinic. She saw a chap in Boots who suffered the
Hi Jack. I know you wrote this a year or so ago. But I feel it's important to share an experience I've had with my daughter. Sorry it's a bit long, but it's very relevant...and important.
Taking b12 folate, folic acid or any nutrient has to get from the blood to the cell. This process is called Methylation.
Roughly a quarter of the population has a defect in the MTHFR gene pathway, depending on if you have one or two copies of this gene, can lead to either 40% or 70% inefficiency in uptake Methylation of b12 and Folate (that is getting from blood to the cells) !!!
Yes you can easily get around the problem!!! Taking bio available B12 and Folate which has undergone methylation. This bypasses the problem of the defective gene and can be directly absorbed/methylated without the body having to do it. Taking Folic Acid does NOT help it has to be Methyl-folate
Now another problem you should know, is that white flour and everything made with white wheat flour contains Government Added Man-made Folic Acid, which is harder, or impossible to process for people with this defect in their gene. Most Vit B supplements from the shops contain this. Pregnant women are told to take this. It is man made stabilised form of Folate. And those with defects, not only can't absorb it, but some actually can't process it out of the body!!!! Where does it go? So what happens if you are pregnant? I don't know but it's not good. It can even block the Folate receptors so actually your bloods look normal. But you are still ill.
GPs are very dismissive of the problem behind MTHFR. I think lack of understanding, current research, and training in genetics.
So my advice is get bio available Metabolic Maintenance Vitamin B Complex ( £35 is the cheapest Ive found it via iHerb on line) Very good complex and all good quality components.
Made huge difference to my daughter now 16, her anxiety massively reduced. This has since all been proved right with doing her epigenetics. I'm also taking it for brain fog. Also reducing white wheat flour/folic acid (go GF generally rice flour so no added FA)!
There "endeth" the lecture you didn't ask for!!! 🤗🥴😘 It's just very good to be aware of.
I have so much more info if you want pointing in the right direction. But check out MTHFR gene polymorphisms on internet. Dr Berg explains it quite well.
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