Interesting article POTS & PA - Pernicious Anaemi...

Pernicious Anaemia Society

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Interesting article POTS & PA

EllaNore profile image
8 Replies

 I Came Upon this article I thought was interesting . This person was found to have POTS which then led to PA diagnosis. They were only low b12 200-400 range so was they fell through the cracks for decades I thought it was an interesting article.

bewellandb12.wordpress.com/...

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EllaNore
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8 Replies
wedgewood profile image
wedgewood

Good article — Thanks .

EllaNore profile image
EllaNore in reply to wedgewood

You're welcome.

Narwhal10 profile image
Narwhal10

Thanks EllaNore,

It took them some time to find the correct diagnosis which is a real shame.

I enjoyed a quick scan of Sethi, Robilotti and Sadan (2004) work of Neurological Manifestations Of Vitamin B-12 Deficiency The Internet Journal of Nutrition and Wellness which was the 3rd link entitled ‘various impacts of vitamin B12 deficiency on the nervous system’.

It was well written in my humble opinion and was the medical journal references were there.

EllaNore profile image
EllaNore in reply to Narwhal10

Yes, the side links can be very helpful. I was checking them out as well. Sleepybunny posted some that had great side links. I'm glad it was useful.

Cherylclaire profile image
CherylclaireForum Support

Thanks fo that - interesting - and have also started reading the Neurological Manifestations link.

EllaNore profile image
EllaNore in reply to Cherylclaire

My pleasure, Yes, that is an interesting read as well.

Nackapan profile image
Nackapan

Thanks interesting. Thank you.

I think the undiagnosed b12 deficiency/PA

Megobolastic anaemia

Caused my daughters ;

' fibromyalgia '

Then hernia bulge in spine

Then a switch to

POTS

Then a

HEDS diagnosis eventually.

EllaNore profile image
EllaNore

You're welcome Nackapan. I am sorry your daughter has all that. Does HEDS go away? Maybe one can one have all of those at the same time? Perhaps one hides another? I had a synovial cyst in my spine, but they don't see it anymore. But I have small clumps of nerves?? I go to a specialist next month. We'll see. I wonder if a hernia bulge is the same as a synovial cyst?

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