Well I have been talking regularly with J. And considering what she has been through (Stroke and Covid contracted in hospital) she has been remarkable in her attitude to fighting her condition. She has had 5 B12 injections (that's what is prescribed in our area) and she says it will be tested again in 3 months.! She now has walking frame/wheelchair, raised toilet,sofa etc. Awaiting bespoke platform for door as it has many steps.
Today physio on wrist, tomorrow physio on fingers !!!!!
Local people still injecting her night and day !
The only thing I have noticed is that she is beginning to repeat herself (Just like my sister who has dementia).
I hope her improvement continues, will have to see if all what she has had to endure lately doesn't lead to PTSD.
My Partner (school friend of J.) is improving, setback at weekend, three days in bed with back (just washed up cup in sink and bending over his back went) He's up today but cant put socks on etc, but we will get there !
Told him to walk around and its improving very slowly.
Thanks for keeping us updated.5 B12 injections - sounds like they are expected to produce miracles.
Let's hope they do.
Repeating yourself could be B12 deficiency memory problems. I often forget what I have written on here - or even that I have replied already, so have to check through responses to posts. In case I start arguing with myself !
Glad she is fighting - hope the physio will prove useful in aiming to recover fully.
Sorry your partner also having a bit of a hard time.
Well they have both had 5 injections now, I can't understand why both of them went down hill at the same time ! Both had covid and flu injections at the same time (shortly before becoming ill) ! Both had to have antibiotics for cough etc, at the time neither had covid. I strongly believe it was one of the injections. Both have said they wont have the flu one again.I know J. And my partner were borderline low B12.
(and funny enough both had dementia tests before getting B12)
Perhaps I'm barking up the wrong tree, just too many similarities for me !
By the way they are with different surgeries (but same county).
Thanks for the update on J and good on her for her spirit. I do hope she gets more injections. Thank goodness others are injecting J. Yes, memory problems can occur with B12 deficiency as well (although, open minded needed).
For me, I knew what a hoover did but no idea how to turn it on or use it - before. Now, I’ll Hoover when I want, last on the to do list.
So sorry to hear of your partner. I do hope his back improves.
I hope you are looking after you as well as others.
Hi there, how are you doing?I'm am surviving, aches and pains but I'll get there eventually!
J. Is remarkable, her attitude was "I'm still alive" , and she has said that the B12 injections really hurt, but she is convinced they have helped her. (Her daughter/Granddaughter are the opposite they have them but don't notice a great deal of difference.....)
She has now put on a few pounds after losing over 2 stone in weight. so going in the right direction.
The other half is improving, put weight back on and a lot calmer since injections so a plus plus situation !
We just take each day as it comes, had made two appointments this week that we had to cancel because of set back.
Hey Oh ! That's life at the moment.
At least we are here and not Ukraine... it breaks my heart
That we cant do more to help !
Take Care , chin up Spring is on its way (fingers crossed)
Good you are surviving, albeit aches and pains. Thanks for asking, I am plodding on.
Great about J. I do hope she puts on more weight. Yes, unfortunately hypersensitivity of skin, joints, muscles can be problematic (years ago even a hug would hurt).
Great about other half and I do hope cancelled appointments are re-arranged quickly.
Yes, the situation in the Ukraine is hideous, those poor people. Having a sense of proportion does help us.
Just spoke to J. She is floods of tears, feeling really awful. Had accident in bed, which I think has had a negative impact on her mentally. We only spoke for a couple of minutes as she just wants to sleep.So not a good day today.
Peripheral neuropathy can be associated with B12 deficiency and sometimes with folate deficiency.
Is she getting any B12 injections once she's finished the 5 loading doses?
If she's able to I suggest she looks up private GPs who offer B12 injections in your area (expensive though) in case her GPs refuse to give her any more.
I'm pleased she's getting treatment but my understanding is that she should be on treatment pattern for those with "neurological involvement" in link below.
J is being tested again for b12 in 3 months, she is housebound now, sleeping in the dining room most of the day. Very unlikely to find private doctor!
I haven't been down this week, as she is so tired and with physio coming in two days a week, and others morning and night for injection it takes a lot out of her.
I seen J yesterday, very frail, muttered that she fell out of bed. I fear that will be the last time I will see her, she has now been readmitted to hospital.She can hardly talk and thirty years older !
I don't suppose the doctors will admit that the B12 deficiency symptoms could have been acted upon sooner.
It might be helpful if her family can access her medical records but she would probably need to give written permission for someone in her family to do this.
If she is in danger of losing the capacity to act for herself then she may want someone to take on Power of Attorney. See link below.
Power of Attorney cannot be taken out after someone loses capacity, it has to be done while someone has the capacity to agree to it. There are two types, one for financial matters and one for health matters.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Devastated at docs. 
Gp 4th update 
Update on other half!!!!
About B12 from my Canadian Friend.
15 year old granddaughter 
