Could it be

[Mozza127]

Can arthritis be mistaken for ur body telling your b12 is low or is thier a connection between the two

[Hidden]

Just goggled b12 and bone pain........ very interesting reading and connected.

[Mozza127 in reply to Hidden]

Hi. Yes it can be difficult to separate which is which

[Nackapan in reply to Mozza127]

My daughter was sent to rheumatology Arthritis ruled out lupus ruled out

B12 deficiency missed

Even went to pain clinic!!

[Mozza127 in reply to Mozza127]

Has any one else experienced any coincidences With low B12 Athritus or high blood pressure

[Mozza127]

I'm trying to devide the two which is hard. I'm starting to think my problems are more down to b12 than what my doctor actually says

[Mozza127 in reply to Mozza127]

Also another I was wondering about is low B12 and blood pressure if anyone has any info if thier a connection thanks

[Nackapan in reply to Mozza127]

Mine was checked at loadng doses as was told can raise it . I think from actual injection. Mine stayed on the low side.

110/70 on several occasions

But since a bit higher

[ClareP5 in reply to Mozza127]

My blood pressure went higher when I was B12 deficient- don’t know if that was linked to causing migraines. Back to my slug like 100/65 - feeling good!

[Mozza127 in reply to ClareP5]

Interesting point Clare what BP tabs u on

[ClareP5 in reply to Mozza127]

Not on BP tabs - I have always had low BP, body temp and pulse- runs in the family. Feel really well now I am on B12 SI EOD.

[Mozza127 in reply to ClareP5]

What type of b12

[ClareP5 in reply to Mozza127]

Hydroxocobalamin

[Mozza127 in reply to Mozza127]

Cyanocobalamin 1000 pg 1ml

[Hamayeshguy]

In my case started with B12 deficiency and I watched my symptoms and I am hundred percent sure it's B12 deficiency but my doctor insist it's rheumatoid arthritis which is wrong. My pains go away by taking and injecting B12 and also taking iron pills. B12 deficiency related symptoms can not be traced to it's root cause after course of injection get started so doctors just suspect of rheumatoid arthritis which in most cases is wrong.

[ClareP5 in reply to Hamayeshguy]

They can check RA with a blood test I believe.

[Mozza127 in reply to ClareP5]

Yes they check imflamtion in bloodsBut if you also have low B12 and Arthritis. It must be very painful and low B12 could be causing sum arthritic problems don't take me wrong arhritus is horrible just pointing out more frequent injections might help

With thanks

[Marymary7]

My daughter has rheumatoid arthritis and developed swollen lumps around wrist and elbows. Surely that has to be the real thing and easily distinguishable from a b12 deficiency? Where your joints don’t actually swell but are painful. She injects a disease modifying drug, Humera I think it’s called.

[Mozza127 in reply to Marymary7]

Hi. Yes I agree with that. I'm just try to differate the two as I had very low B12Lots of bone and joint pain. But since I've had injections closer together my symptoms are I'mproving.. My doctor said I had arthritis which I might have but the lack of B12 may have made it worse or just makes it feel like it's worse cus of low B12 just thought was an interesting point for people who suffer from both elements

With thanks

[Marymary7 in reply to Mozza127]

I think so much is connected and gps are not that interested. B12 deficiency, Underactive thyroid....so many things to look at for bone pain. In my case at a child I had excruciating bone pains in my legs every night I now think it was probably vitamin D deficiency. They called it growing pains. I also have the other problems I mentioned...b12, thyroid. Good luck everyone, we have to do our own research and experiments 😀

[Mozza127 in reply to Marymary7]

I don't think b12 is that expensive does any one know where to get them from at reasonable cost

[ClareP5 in reply to Mozza127]

Amazon Germany is where I get mine

[Sleepybunny]

Hi,

B12 deficiency can be misdiagnosed as other conditions.

b12deficiency.info/misdiagn...

Quite a few on here get a diagnosis of ME/CFS/Fibromyalgia.

I had constant muscle, bone and joint pain before I started B12 treatment. I rarely have these symptoms now but need far more B12 than NHS ( I'm in UK) is willing to give.

I did see a rheumatologist years ago and yet again I asked if it could be B12 deficiency, to which rheumatologist said I think you've got fibromyalgia and missing the point that B12 deficiency can cause fibro type symptoms.

[Mozza127 in reply to Sleepybunny]

Yes I agree with you mine has improved after more frequent injections thinking of bringing them closer together to see how much more I improve. My docs will only do every 8 weeks so I do every other month but can get a year's supply for around £30.he said it was arhritus never mentioned low B12 till I moaned like Victor meldrew. I said after 3 month ghas improved. Don't take me wrong was still having and in pain

But any improvement is a good thing and I bet its cheaper than iburfen cheers

[Jillymo]

My BP tends to be on the higher end of the scale which is normal for me but diuretics prescribed by my cardiologist keep it in check.

I have lived with both Osteo Arthritis and Fibromyalgia for many years and know the symptoms and flare ups very well.

I was diagnosed with low B12 a year and a half ago now and what a battle it has been ! I had the blurred vision, weakness, balance and memory issues that run along side of the condition.

Both the bone and joint pain were chronic - as was the lethargy.

I started with a loading dose then 3monthly injections but still felt 'very unwell' so I requested injections every 2months which were given.

I was still suffereing great pain and numbness in both my hands and feet, I could hardly walk and was unable to function.

My wrists were exceptionally painful and I were now battling with my gp who is insistant I am seen by a neurologist.

I asked how I were suposed to sustain the symptoms whilst waiting possibly weeks or months to be seen - but my Dr didn't respond.

Like many on here I took matters into my own hands and self injected - at first weekly then every other day. After injecting symptoms would become worse then gradually ease off giving me a few hours of respite. I then decided to inject everyday which can become a chore but if it were helping me to function that was what I had to do.

I can once again use my hands and open jars. My feet are not so numb and the burning and stinging is much less - if I miss an injection the symptoms comes back !

I am due to see the neurologist in Feb. I know exactly what will take place.

It will all be put down to my suposed FM and my Arthritis which is crap.

You never know I might even get a label of Functional Overlay but I shall be insistant it is my B 12 and request further investigations.

My stupid Dr is still checking my B12 levels a year and a half after treatment, they simply havn't a clue. Infact a nurse did my blood only yesterday ! Shock horror my levels will be high because I am on injections but the silly asses cant get their stupid heads around that one.

P.s I have just read your posts - I too had the most dreadful gout in my big toes. It was excruciatingly painful so much so I took photo's of it because the joints looked blue.

[ClareP5 in reply to Jillymo]

It’s such a shame as B12 is a relatively cheap and easy treatment- you’re making progress- I say keep going!

[Jillymo in reply to ClareP5]

That is why the NHS are reluctant to prescribe it there is no money to be made on it ! Our health and well being doesn't come into it.

[Hidden in reply to Jillymo]

There maybe no money to be made on it, BUT the money saved from not having to prescribe other medicines or referrals to neurologists etc. No wheelchairs, no dementia nurses no carers is huge.The most important thing ... having a life !

All the NHS is doing is making a rod for there back and ruining peoples lives.

[Jillymo in reply to Hidden]

I totally agree but seems lives come cheap to the NHS.

[WeeMj]

I'm very glad I've across this conversation as I have arthritis in both hands (mild) . My b12 is always on the low side, but my gp states I'm fine. My pain is really sore for being mild arthritis. Do any of you have to self inject due to gp reluctance to give b12 injections? What type of b12 do you use? Will definitely be asking about b12 injections as mine where in the lower end of range and I'm sure they must be near the top of range?

[Mozza127 in reply to WeeMj]

Hi. My pain started in my wrists then my hands where stiff in mornings and pins and needles my doctors where not interested but I'm very persistent I got it down to every 16 weeks to every 8 but I also self inject every other month.Also started getting it in my toes which through of my doctors diagnosis don't take me wrong I might have a bit of arthritis but I had other symptoms to. But since my pa diagnosis and taking b12 injections I'm improving. I'm considering doing it every 3 weeks instead of every month

I use cyanocobalamin 1ml

[Mozza127 in reply to Mozza127]

Does any body with low B12 suffer with heel pain

[helvella in reply to Mozza127]

Do you mean Plantar Fasciitis?

If so, consider the possibility that you have a thyroid issue. A regular topic on Thyroid UK forum. Certainly seemed to be the cause of mine!

[Mozza127 in reply to WeeMj]

Yes since I've brought my injections closer seem to have a bit more bone pain.. Breathless and feel irratableAnd sweaty... Hopefully will settle also noticed base and heel of my feet very sore

[Mozza127]

Happy new year everyone let's all get as healthy as we can. Start afresh didn't think my docs would do injection cus of boosters goin on but I'm in on the 6th gona do every 3 weeks see if I improve sum more

[Hidden in reply to Mozza127]

Good to hear your doctors giving you booster.

You never know it could lead to a hop skip and away you go !