Update on GP request for Serum B12 fo... - Pernicious Anaemi...

Pernicious Anaemia Society

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Update on GP request for Serum B12 for patient already on treatment.

GGourmet profile image
3 Replies

About 2 months ago I wrote about my GP having sent a text in the evening saying he was reviewing all his patients on Hydroxycobalamin injections. He wanted to review my treatment and conduct a serum B12 text. You were very helpful and I’ve discussed that this is both a test without merit and non compliant, as I’m on treatment.

Formal complaint issued and this is the verbal response.

As I receive B12 injections which are licenced but not for my condition, as I have never had a positive test result for known causes, the GP must review his prescription - so I am told. This occurs especially where there is a change in GP as there was for me, even though it was within the same practice.

Hopefully this is all true. I offered that practitioners may wish to hear about people’s experiences of the condition, as many just don’t understand it.

If you have any comments these will be appreciated.

I must add that he is happy to continue the treatment regime already in place without further testing.

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GGourmet
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3 Replies
Narwhal10 profile image
Narwhal10

Hi GGourmet,

If your doctor is happy to continue regime. Then, thank goodness. The IF test is wildly inaccurate. Plus, there’s such poor understanding. Keep screen shots of texts and copies of letters. Dates in diary and copies. PA society membership may help. (Just in case they try the same in the future).

Best wishes

GGourmet profile image
GGourmet in reply to Narwhal10

Thank you. I’m already a member of PAS.

deniseinmilden profile image
deniseinmilden

It's heartening to see such a sensible discussion. I believe they are right to review it - which they have done so can tick that box - and it's great news that they are carrying on!

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