PAS news - James Lind Alliance

[Sleepybunny]

Hi All,

Recent PAS news item (from 28th April) discussing James Lind Alliance.

PAS are currently working with JLA to set priorities for research.

One of the things being looked at is the effectiveness of alternative delivery methods for B12.

pernicious-anaemia-society....

There is request for PAS members to take part in a survey.

My understanding is that PAS members without a confirmed PA diagnosis can take part in survey.

It's an opportunity for PAS members to say what topics they want researched.

PAS membership

pernicious-anaemia-society....

Apologies if this has already been posted.

[Hidden]

Interested. I have completed the survey

[Bellabab in reply to Hidden]

So have I.

[Cherylclaire Forum Support]

No- it's been mentioned but not posted directly to my knowledge - the more voices the better, Sleepybunny !Hopefully related to the research on why some need more injections than others.

If this was officially acknowledged, it should finally put an end to patients being labelled as addicts, hypochondriacs etc.