Been taking b12 1000mg for a wwek now and my tinnitus feels a lot quieter but I'm starting to get shooting nerve pains ...my bones feel sore inside like my heel bones especially. This is why I stopped taking it last time and stopped taking other b vitamins as well. I'm taking a complex now and less high dose. But I feel buzzing all over and the shooting pains are like an electric shock going up through my heel as if I walked on glass or a pin. It happened in my back as well and I feel generally just aweful and tired. My legs feel so stiff and heavy. My muscles are getting so tired just lifting something hurts. I don't know if I should stop or if this is just a good side effect of something healing. Its very off putting but if its normal then maybe I need to see it through. I'm trying to move house so its not ideal to be this way right now.
Shooting nerve pains. Healing? Or har... - Pernicious Anaemi...
Shooting nerve pains. Healing? Or harming?
I've had similar and other symptoms. Are you saying you are worse on your supplements?
I got worsex before she better initially with b12 injections.
You sound as though yoh feel better off them ??
Not quite sure of your starting point
Yes feeling worse on them. I had tinnitus for years and about two maybe a year ago ..time is difficult for me...I started taking a b12 spray as its supposed to help tinnotus. So I took it the tinnitus and all over itching tickling went away but then I started to feel pains and aches and buzzings and so i stopped ..I was taking 3000 spray. Then I had some other issues and while on here sorting that out...I saw some posts here and saw lots of other symptoms that I had could be attributable to b12. Like hesrt arythmias and I can't remember what now. Then my tinnitus started getting bad and I said I'd try the spray again maybe the pains I had weren't related... And I said I'd try only a smaller dose of 1000. But its very painful. Just been for a walk and my heels are killing me tried doing some excersise squatty things I normally do and my legs don't feel right. I also feel like I can't maneuver my hands properly. I was trying to serve dinner today and yesterday and my hands just felt slow or uncoordinated or something. I don't know. I felt like I wasn't walking normally at all ...just a werid hard to describe sensation. Maybe some nerves are waking up that are damaged and I didnt feel it before now. It can't be doing any ahrm though right? So even if I am wrong and I don't need it it won't be bad to take it? I think I will have an early night and get some rest and see how it goes...if it gets worse in the next week thought I might stop or reduce the dose. I think I can only absorb 10mg anyway or fbirder said this and he seem a to know his stuff about it. So maybe it doesn't matter how much I take. I don't have a problem that I'm away of absorbing it I just haven't been eating well for a year. Thanks nakapan.
Yes or try a different sort of b12 I felt worse before better but without b12 even worsds if that makes senses.
The vertigo went first b12 and cawthorne pysio then got walking
All what you describe sounds familiar.
It's a rollercoaster
I still have days when my legs are leaden weak or both arms and neck and shoulddrs not right
That feeling in your heels I think is low b12 my daughter describes the same. Pain or numbness
I had that a long time ago whilst working ,as a very physical job. Found exercises to do even had my knees x rayed they still crackle but my heels okay.
It's all so odd and difficult to explain as yoh say
'Boy' what I took fir granted!! .
Aksk difficult yo separate things at times.
I do know ove not had any familiar sort of tiredness since this condition.
At one stage I used to work an 84 hour
Week on nights onnce a month between days on a hospital ward .
Still no comparison to thd sort of fatigue now . It's as though it's not firing on all cylinders.
Ah man that's really not the news I wanted to hear. I thought maybe a few days a week it would be good again. I was thinking I'd stop taking them because I am moving house and its too much on top of everything....but I just remembered that someone said you can take different kinds and some are better worse...I also just remembered that when I had low iron the tablets made me feel aweful so I started eating liver and that was OK. So maybe I will just go the route of eating liver for breakfast. It certainly didn't have the effect on me as these tablets are having and I think liver has all the b vimtins and some others as well...so that could be an option. That I know I don't have a problem absorbing it so maybe that's a good option for me. I really can't handle the nerve pain I couldn't sleep for ages last night. Hopefully its the type of b I'm taking that's causing it to feel aweful. I will check and see what type it is.
Yes check what sort of b12 and try another sort. I tried the liver route to reduce injections
My cholesterol went too high.
A balancing act.
You may well recover fully quickly .
Depends if caught in time and how deficient you got.
Thanks. In don't mind high cholesterol cos cholesterol is a healing thing and women with higher cholesterol have a lower all cause mortality and I take a few antioxidants and although its already high in total its a good ratio so I'm not worried about that. I'd say its not too bad since its responding already that seems like a good sign. and I had zero balance or coordination issues before....just tinnitus tickling skin and aches and pains which could be from other things and not great blood. So I have been thinking when the tinnitus happens my nerves aren't happy bunnies and I had a loss of comprehension of hearing ...like I could hear just find but felt everything a bit difficult to understand so that's a neurological damage thing. And I'm giessing I had more damage than I realised if this pain is regeneration and nerves waking up then a lot of them mist have been asleep. Did the liver supplements work for your symptoms even though the high cholesterol happened? It might be the only option. The label says b12 cyanocobolamine. 25ug. U with a long tail.
In my experience, when the nerves in my mostly numb hands and feet healed, I'd feel burning pain and then regain sensation after. It was a similar effect for my brain, where I'd get exhausted and sleep for 10 hours but wake up with my mind more clear and less memory loss.
Other people have mentioned pain so bad that they couldn't sleep at night and needed to walk around for hours, but it eventually passed and they had feeling in their legs again.
If you're feeling effects, even if it hurts, you should keep taking it. b12 shouldn't be able to hurt you.
Thanks. I just tried to do some yoga and normally have excellent balance can stand on one leg and hop around and do all sorts of fun stuff... I couldnt manage to stay up just normal ...on either leg. Someone said the signals can overload your neeves and cause it to seem like pain. So I'm just going to do all the things I usually can do. Its a bit disturbing and uosetting to suddenly be not able to hold a spoon properly or stand on one foot but I guess the damage was already there I just wasn't feeling it. I remember after I broke my foot having to relearn how to walk so I'll just think of it like that. I'm relearning things I could do ..I don't remember the last time I actually tried to stand on one leg but I do it at home and I have been moving house and haven't even done a stretch or anything for since Christmas. Maybe I've just degraded a lot. Hopefully not hopefully its just a recovery thing. It will be yoga every morning now. Ugh. Thanks. I was so happy to have figured things out and hopefully get better it never occurred to me this would happen. I was feeling very smug with myself but of course its more than just popping a pill. I should have realised. Its rehabilitation of the damage ive done to myself in this last year. Thanks for the reassurance. I will keep taking it for sure. Even more convinced now that I need it to be honest.
My feet became painful after around 8 months of injections. The Neurologist said to carry on as it's the nerves healing and should improve in time.
It has eased now over two years later.
Two years? Jesus. I don't have time for two years of agony. I have stuff to do. Heavy lifting and building and whatnot. I can't do that being stabbed through the legs. And I thought a few days it might pass but it could tske years? I can't take them then. Not until I have time to go through pain .... I mean if it was a few days someone said it took about three days for nerves to regroup their signals..lol🤣😂😅 yeah I can't be healing my nerves.... Not this month anyway. Ugh. I am moving house I can't handrly lift a phone let alone boxes. I have no choice cos if I don't move and pack and do buikding work I will have nowhere to move into. And then nowhere to shop for food. So yup ...nerves regenerating will have to wait.
Decided to stop taking it. This pain can go on for years. I haven't got the time to do that right now I need to be physically doing stuff and nerves aren't very helpful for that it seems. I'll try again another time when I haven't got stuff I need to do. I thought it was going to be a few days and it would pass...but years...I need to be able to walk and lift things... I can't take b vitamins if they're going to destroy me right now. Christ. What a horrible situation you don't get enough you're nerves suffer you get it and your nerves go on fire you can't balance or hold a deck of cards up...gah! No good option there.
Hobsons choice
Realised I can eat liver maybe a small amount in morning and night. Fbirder said and I'm not sure if he means normal people like me...you can't absorb more than 10mg at a time so maybe small doses over time. Its the only option I think. I can't be wobbly when I'm working on renovations. I can't loose my balance or get a shooting pain on the ladder. And I can't not work on my home either. So at least that might not be so unpleasant as the synthetic dose.fingers crossed anyway. Poor Hobson whoever he is. Lol!
OK tablets out... Liver for breakfast in. If I can absorb it from these sprays and tablets I can absorb it from food and maybe in its natural form it won't feel so bad. I know iron tablets felt aweful too. But I felt great eating iron rich meats. I am guessing and maybe fbirder will tell me if I've got this right...that it would be best to eat a small amount morning and night every day. Than a large meal three times a week. Because it can't be significantly stored or absorbed ...even if I am normal and have the if etc. Which I believe I am normal in that at least. I can't stop taking the b but I can't keep taking these either. They say b12 cyanocobalomin 25ug 1000% RDA. I thought they were 1000mg. The spray is 1000something iu?
Feeling so much better today after stopping yesterday everything got better and better till the shooting pains stopped. But also realising that my nerves will need to go through a regeneration curve that may be painful. When I'm not moving house of course. Been reading about nerve rehabilitation and was thinking allantoin might be helpful. Its helpful for building blast cells. Wound healing bone regrowth. So might be worth looking into that.
and also looking into excersises that helps reorganise the signals of nerves. It may be that b12 only gives the ingreient needed but doesn't have all the factors to make the soup. So I want to have as many tools to deal with the pain of my nerves before restarting the b12. I obviously need it if my nerves are screaming when they get it...
Has anyone had neurological rehab for their nerves after being diagnosed with nerve damage. My mom has diabetic nerve damage and had a programme for doing things to help heel her nerves. I suppose that would apply here as well.
Hi there,
Just wanted to say that I too have had no end of troubles trying to deal with the horrid side effects of taking B-12. I am very sensitive to many things, but have found that my legs become so heavy that I can hardly walk. Arms are starting to feel the same way. Also am experiencing edema in my feet. The nerve pains and body aches are also hard to take. Even my eyesight feels more blurry and strange. I also have feelings like my hands and fingers are not working correctly. This has been going on for three weeks now. I am going to have to go off and see if my walking improves - it is an essential function in my view! The dizziness and vertigo have also been a treat. I was not feeling well before starting - but I did not have any of these crazy symptoms prior. It is looking like liver for me as well!
Take good care!
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