Just wondering if anyone can offer any insight. Apologies for the long story-
I got diagnosed with a B12 deficiency 2 years ago , with a blood result of 152. I was also Anemic. I was suffering from bowel issues, exhaustion, brain fog, muscle twitches, joint pain, burning stomach and a whole lot more. All of the symptoms seemed to creep up on me and before I knew it I felt really unwell.
I had a whole barrage of bloods done testing me for rheumatoid arthritis, lupus etc. Everything was normal except my b12 level and a high normal rheumatoid factor- which was 19 , and my R bc was low.
They gave me the initial dose of 5 startup injections which yielded in little relief.. and a prescription for iron.
After a couple of months the only symptom that went away was the exhaustion, so I suppose the iron did its job.
So after doing some research and reading a lot of posts on the old PAS forum, I started self injecting hydroxocobalamin sub cut every other day. Very slowly I started to feel like my old self again. Some symptoms have never gone away, I still twitch and suffer zapping pains and have chronic ongoing bowel problems (for which I have been referred to a gi)
I self injected like this until I fell pregnant 5 months later. Not knowing how it would affect pregnancy , I went down to one injection a month.
Fast forward a year and because I breastfed I was still Injecting once a month.
In April I started getting severe nerve zaps and the muscle twitches increased ten fold. I also started to feel extremely anxious and was getting pains radiating in my muscles and intense pains in random places. For example one night my little toe started to hurt REALLY bad. So much so, I grabbed my foot until it mysteriously just went away seconds later. So back to the doctors I went for more blood tests.
He has referred me to a rheumatologist now and did a load of bloods-
I thought my B12 was going to be low given all the symptoms- but it was actually over 2000! I had a Microcytic anemia, and my folate acid level was 2
I have been on folic acid for 3 months now and iron twice a day but the last couple of weeks I have started to notice I feel worse. My hands and feet are tingling and going numb in my sleep. I have stiff legs when I wake up or if I have been sat down to long. I literally waddle for a few seconds before everything warms up and I can move normal again. I'm also getting pain in the bottoms of my feet and it hurts to walk sometimes. I
have the doctors this fri am for repeat bloods to make sure everything has corrected itself.
Last time I was there though, the Dr made a comment that I wouldn't need a B12 injection for 2 years given the amount in my blood.
After doing some research I have come across an article on Wikipedia which says that if folic acid is given before b12 it will turn any remaing b12 at cellular level into (can't remember what it is called) but basically rendering the remaining b12 useless.
Also from what I have read the b12 level in my blood might also be useless , as it didn't have the folic acid to complete the chemical chain?
So basically Im asking could I be B12 deficient again, even though I have a blood reading of over 2000.
Sorry for the ramblings, and if you have gotten this far- thanks for reading : )