Hyperbaric oxygen therapy: A friend in... - Pernicious Anaemi...

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Hyperbaric oxygen therapy

Nackapan profile image
9 Replies

A friend in Canada thinks this a good therapy and may be of use to those with PA or b12 deficiency??

Has anyone heard of this?

Has anyone tried it.

I looked on Google and dont really understand it.

I know pure oxygen can be used as pain relief. That's all though.

Google didnt explain it well just kept leading to clinics

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Nackapan profile image
Nackapan
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fbirder profile image
fbirder

Michael Jackson used to swear by it.

That's enough to put me off.

Nackapan profile image
Nackapan in reply to fbirder

Justin Bieber too it seems....ummPerhaps not .

I'd never heard of it.

Gambit62 profile image
Gambit62Administrator

This may help explainhopkinsmedicine.org/health/...

Doesn't really sound like something that would benefit PA/B12D

Nackapan profile image
Nackapan in reply to Gambit62

Thankyou for that link. No it doesnt sound like it would benefit anyone with PA.

Coukd be good for other things by the sounds of it.

USmedsyssucks profile image
USmedsyssucks

I've actually seen a number of studies discussing the benefits of hyperbaric oxygen therapy for a variety of inflammatory and neurological disorders. I don't have time to link the studies now but could later upon request. A family member did HOT for nerve damage due to oxygen deprivation at birth and it seemed to have great effects. I am currently trying to obtain home oxygen therapy via an oxygen generator for neurological effects caused by a terrible combination of B12 deficiency combined with long-term exposure to toxigenic mold. The research I've done plus the testimonials from others in similar conditions were enough to convince me that trying oxygen therapy is certainly better than doing nothing and suffering in my current state. Of course, the underlying B12 deficiency present in PA need be addressed first, but I think this could only be helpful as an adjunct therapy where neurological symptoms persist. The problem is paying for it, which is why home oxygen therapy is the route I'm going.

Nackapan profile image
Nackapan in reply to USmedsyssucks

Have you tried it yet?

USmedsyssucks profile image
USmedsyssucks in reply to Nackapan

I actually just received my oxygen concentrator and relevant supplies a few days ago, so I don't have anything to report yet except that apparently one needs to buy special tubing. The usual crap has a terrible chemical smell that prevented me from using the machine at all (it actually gave me a migraine rather than helping them). A bit of google searching confirmed this is a common problem. Supposedly you can buy non-toxic, no-odor, non-carcinogenic tubing from special distributors. I wouldn't have thought any of these things would be an industry standard, but the inadequacy of our medical system never ceases to amaze me.

Nackapan profile image
Nackapan in reply to USmedsyssucks

Oh dear. That's horrible

Hooe yih can get some relief if yih csn get it tk work with correct tube g.

Nothing easy!

USmedsyssucks profile image
USmedsyssucks in reply to Nackapan

So it's been a while, but I thought I would update for anyone who views this post. The oxygen therapy did not work for me . After I sorted the tubing issue out, I still noticed that I would feel more tired and have increased head pressure/pain after using the oxygen concentrator (nothing like the chemically-induced migraines from the original tubing though). Going into this, I did know there was a decent chance that it would not help my migraines, as oxygen therapy is only currently proven effective against cluster headaches. My partner, who was also exposed to the mold but does not have PA /B12 deficiency, does not have these effects and does seem to benefit from the oxygen therapy. Overall, I don't regret the purchase even if it didn't help my migraines. The other therapies for migraine are significantly more risky, so trying something as safe and simple as oxygen therapy was a logical first step, it just didn't do the trick for me. I would say that if a person is truly suffering from neurological issues, there's no harm in trying oxygen. It's nowhere near as harmful as the fistfuls of pharmaceuticals with all sorts of neurotoxic effects that are often recommended for such conditions, so the potential risk to benefit ratio is very good. Hyperbaric oxygen certainly helped my cousin.

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