Storing hydrocobalamin: Diagnosed with... - Pernicious Anaemi...

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Storing hydrocobalamin

Shadowlight profile image
13 Replies

Diagnosed with PA a couple years back in New York City. I was under- and untreated much of 2020, but now I'm injecting loading doses of Vit B Depot Helvert ampoules from Germany, which I am very happy about. I am not seeing (or maybe seeing and not understanding) guidelines by which to store it. Each ampoule is 2ml hydrocobalamin. I am assuming that I need to avoid extremes in temperatures and sunlight, Will I need to store them in the fridge or will a cool dark pantry suffice?

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Shadowlight profile image
Shadowlight
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13 Replies
wedgewood profile image
wedgewood

Cool and dark is ideal, the “cool” being under 25 Celsius . I do put my ampoules in the top of the fridge when we get a heatwave here in the U.K. . Always keep the ampoules in the packet , I would be interested to know where you obtain your Hydroxocobalamin ampoules from in Germany , as American members often try to obtain them without success . Best wishes .

Shadowlight profile image
Shadowlight in reply to wedgewood

I was having tremendous issues getting a supply from doctors. As I'm sure you know, undertreatment is an issue. All that can be bought in the US without a prescription is intended for animal use. I cast a wider net. Found a reconstitutiable powder in Great Britain. Wasn't wild about that for a lot of reasons. On my second grand google foray out, I discovered B12 Depot. Hevert, through Amazon. I originally learned of that source from here, and thank everything holy for it on a daily basis. Changed my life.

It's the reason I asked, though. I now have a supply for at least 1/3 of the year and will restock when supplies for new expiration dates are available. I was unable to walk and spiraling into dementia when I got my diagnosis. I only got enough treatment for my life to be saved and to slow but not stop my symptoms Thanks for your advice. Hope this link works:

amazon.de/gp/product/B00EXI...

~shadowlight

wedgewood profile image
wedgewood in reply to Shadowlight

Thank you Shadowlight .I’m so pleased that your health had improved . . I used to use Hevert 1mg x 2ml ampoules , but now prefer 1mg x 1ml ampoules ( Rotexmedica B12 depot Hydroxocobalamin) , as it is less to inject but the same strength . You were wise not to go for the powdered Methylcobalamin, which needs to be reconstituted . Much safer to use single use ampoules. 👍👍👍

Shadowlight profile image
Shadowlight in reply to wedgewood

Yes, I did notice the difference in dosage. I was just so desperate to get B12 into my system that I didn't care (well, I cared enough to forgo powdered Methyl, though. That just sounded like a bad idea all the way around. Too many possibilities for contamination. Still...it's in my back pocket in the event of an emergency). So far, I have been treating the excess Helvert dosage by withdrawing it into a syringe and injecting it the following day, which, right now, seems reasonable and safe to me, though a waste of needles. I don't mind the extra "stick" I'll ask a nurse practitioner next time I see one (what are your thoughts?).

~shadowlight

B12inUsa profile image
B12inUsa in reply to Shadowlight

Hello. I live in USA , I checked the link at it was 98 euros for shipping ! Are there any other reputable sellers to USA than do not charge as much, Canada in a or something ?, thanks

Shadowlight profile image
Shadowlight in reply to B12inUsa

That's the best price I could find. I was so desperate for a supply that I didn't think twice about it, and my improvement has been so marked that I know my choice was valid. Money well spent even though shipping exceeded the cost of the product.

Worth mentioning is that the same amount of B12 in the US -IF I could get it - is 10 times the price. $2,500.

Bellabab profile image
Bellabab

I live in Southern England and store my ampoules in their original packaging in a drawer in my living room. I have an accurate thermometer along side it in the drawer and when it is hot here the temperature next to the B12 pack never rises above 24 Centigrade and even then for less than an hour. Hence it is kept perfectly.

Shadowlight profile image
Shadowlight in reply to Bellabab

Thermometer. Hadn't thought of that. Thank you.

:)

~shadowlight

Qipster profile image
Qipster

Do not store hydrocobalamin in the fridge. It says on the packet instructions

fbirder profile image
fbirder in reply to Qipster

Not in any of mine - medicines.org.uk/emc/files/... - it just says 'below 25 C'.

There is no reason at all why it shouldn't be kept in the fridge and lots of good reasons why it should if you live in a hot country.

Shadowlight profile image
Shadowlight in reply to Qipster

Thanks. Mine doesn't say, so I am erring on the side of caution. Hence the question. My inclination is pantry also, but in the dog days of August, my glass n ruby beauties are going in the fridge. I'll be speaking to a nurse practitioner about this soon. I'll let you know their answer.

fbirder profile image
fbirder in reply to Shadowlight

Ah! Do you not get a Patient Information Leaflet with your drugs? Ours have to give certain bits of info, including storage instructions. You can print it out from here - but it will be in German. versandapo.de/vitamin-b12-d...

Shadowlight profile image
Shadowlight in reply to fbirder

I don't understand much German - American, remember? I barely speak English :)

I did ask a friend to translate, and I can't see anything that has numbers. Perhaps they are written out.

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