Symptom relapse - confused - Pernicious Anaemi...

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Symptom relapse - confused

Ctadds1 profile image
8 Replies

I have been receiving injections since July and feeling much better. Not perfect but better. The past week I have terrible shortness of breath, chills, aches, fatigue. I haven’t felt like this in months. I do think it’s B12 related and not something else. Is it normal for this to happen? If so what causes these periods of regression? I’ve spoken to 2 different docs about this and they just shrug their shoulders. They make me feel like since my blood levels are up I should feel all better. That is not the case for me and I’m starting to worry.

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Ctadds1
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8 Replies
Nackapan profile image
Nackapan

Have you had a recent blood test.? To check thyroid ferritin iron folate ect?

I've never got thr 'place ' toh described bug slowly going in the right direction.

I too am shocked when I cant function at all. Like put the washing out or cook a meal or walk without looki g lkje a drunk. ???

Are you doing a bit more?

Is your b12 regime okay

Its relatively early days for you. Perhais another round of healing?

You've told the doctor.

Listed your symptoms.

Hope it goes ad quick ad arrived.

A roller coaster

At times I was doing more over a year ago.

At times I'm doing more now.

Just have to rule out anything else

Check on vitamins food ect and ridd the storm.

Its really good initially yoh felt alot better.

Perhaps a look at your regime ?

Hope you feel better soon

Ctadds1 profile image
Ctadds1 in reply to Nackapan

Thank you for your reply. I just had a whole round of tests and everything came back perfect. I have been getting monthly injections and that has seemed to work ok for me. I’ve been pretty busy with the holidays fast approaching here in the US. Maybe I’m just over doing it. Thank you for reminding me I am still early in my healing journey. Patience has never been a strength of mine but this sure does require a lot of patience!!

Nackapan profile image
Nackapan in reply to Ctadds1

Same here. Patience is a hard thing to find I get so frustrated.

Haveitall profile image
Haveitall

Have you had a COVID test? Those are some of the symptoms.

Ctadds1 profile image
Ctadds1 in reply to Haveitall

No but I’m pretty sure this is B12 related. I used to feel like this a lot before diagnosis and treatment. It had gone away for months and a few days ago bam, it all came rushing back.

LWhelan profile image
LWhelan

I find this very normal ...... I have good and bad periods and I don’t know why. Been like that for years. The only thing I do know is that if I’m stressed it’s worse and if I eat very healthy it’s better on average.

Seth12345 profile image
Seth12345 in reply to LWhelan

How often do you Inject?

LWhelan profile image
LWhelan in reply to Seth12345

Once a week 👍

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