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Pernicious Anaemia Society

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NHS GPs and COVID-19: Refusal of maintenance B12 injections for suffering patients.

Crittercrackers profile image
7 Replies

How are other members coping with NHS GPs refusing to let B12 deficient patients through the door for their brief, but very important treatment, when the law has allowed longer visits to pubs, hairdressers, etc?

I’m finding life quite challenging at the moment, 19 weeks after my last (8 weekly) injection. As a key worker who’s not been furloughed and carried on as normal (well sort of, social distancing regs being followed by all staff, if not all the customers!🤬)

I am baffled that I cannot get a 60 second appointment with a practice nurse! I’d be interested to know other’s view/experiences.

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Crittercrackers profile image
Crittercrackers
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7 Replies
fbirder profile image
fbirder

Most people now seem to be getting their injections. Many have had to resort to writing to their GP.

You should write, giving a brief list of the pain symptoms that you are experiencing. Send copies of the letter to the practice manager, your MP, local press, radio and TV.

You might want to include a copy of the BSH guidelines - b-s-h.org.uk/media/18259/bs...

Nackapan profile image
Nackapan

My surgery have continued to treat me. If I go to the locked surgery with a mask on a fully masked nurse let's me in injects me and I'm out. There is no reas8n for thud not to happen everywhere .

in reply to Nackapan

My surgery has been the same with loading then three monthly shots which are no where near enough so I self inject in between appointments but for Other blood tests I need done ,as asked for by consultant ,I have had to go and queue in corridors with loads of other people at local hospital outta no me more at risk while gp and nurses are sat in surgery with not a patient in sight it’s ridiculous.

Nackapan profile image
Nackapan in reply to

That is ridiculous i get my bloods done at the surgery one patient at a time

Chocolate41 profile image
Chocolate41

Just say you are a nhs worker and you are happy to give them yourself.

Collect the Ampoules from the surgery.You can buy syringes and needles from ebay.

Before lockdown my Gp would not allow me to give them to myself.!! Why I don’t know.Now they have agreed there is no problem.!,

Amazing

Good luck.

Babette profile image
Babette

My mum's not been able to get hers and been prescribed Solgar sublingual cyanocobalamin. The GP has been happy to give her a blood test though! The local clinic let it slip that the GPs are reluctant to do it because they're not being paid.

Potterjane profile image
Potterjane

My GP prescribed the ampoules and needles etc. (I was still on loading dose jabs every other day). My other half now does the injections. After the first attempt of a couple of trial stabs and the “I didn’t realise skin is so tough” comment, he is now very good at it! 😀

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