My eyes,

[Kate71]

I had a eye test at optician Thursday got appointment for Wednesday at hospital. Now I have appointment for this Wednesday, seems I have fluid behind right eye. Could this be because b12 injections sopped in March. Have complained to MP and doctors, but they are still refusing my injections. I was told on the phone a few days before my appointment on the 5th May that could not get injections, for a year, so happy I joined this group. As more or less told it was all in my mind. Fed up complaining as it’s like speaking to a brick wall. Any advice please.

[Nackapan]

Sorry to hear you have problems with your eye.

Are you a member if PAS?

There has been alot of info of how to complain and ti get tired b12 injections started again.

How often have you been having

g them. ?

Always best to Write in to Gp

Copy in practice manager and mo if possible.

[Nackapan in reply to Nackapan]

*get your injections started again

Copy in Mp if possible

Letters cant be ignored in the same way as telephone consults. They are scanned on your notes

[Kate71 in reply to Nackapan]

I have emailed them, even wrote to the first minister Scotland, told to chat to doctor, who still refused. Think it is up to doctor. Probably have made myself unpopular, and they are sticking there heels in. Have not a clue on what to do. I am in agony with my back, knees elbows, forgetful, headaches etc. Thank you for listening. Thinking of going private, I am just a ordinary pensioner, so does anyone know what it might cost, would be worth it every 8 weeks.

[Kate71 in reply to Nackapan]

I was getting them every 8weeks, last one was around 4th March

[Nackapan in reply to Kate71]

Have you considered self Injecting.

I do subcutaneous ones. I havent had my treatment stopped but got worried incase it would and also wanted to try a higher frequency.

Have you been seen by the hospital yet? If not ask them. They will write to your Gp .

Can you change doctor?

I saw a neurologist privately. It cost £120 for headaches.

You shouldn't need to go privately only if you choose to.

Private Gp around £70

Prices vary. .

Meanwhile have you tried high dose b12 tablets 1000mcg

Some they do nothing for. Others gain a bit .

[Sleepybunny]

Hi,

Have you discussed your B12 deficiency with the optometrist/opthalmologist?

They should be able to look for signs of B12 deficiency in the eyes.

"Have complained to MP and doctors, "

Have you put your complaint/concerns in writing to the doctors and talked to Citizens Advice service?

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

CAB NHS Complaints

citizensadvice.org.uk/healt...

If you need support with making a complaint may be worth looking into advocacy services.

citizensadvice.org.uk/healt...

Link about how to complain about GP/GP surgery

which.co.uk/consumer-rights...

Article about time frames to respond to complaints in UK.

medeconomics.co.uk/article/...

There may be other useful info in the links in my reply on your other thread.

Have you considered joining PAS who can offer support and useful info?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS support groups in UK

pernicious-anaemia-society....

No meetings during pandemic.

B12d.org have support meetings.

Recent ones have been on Zoom.

b12d.org/event

Have a good look at B12 Deficiency Info website as lots of useful info.

b12deficiency.info/

[Sleepybunny]

Hi,

As you're in Scotland, you may be interested in this petition about B12 deficiency that went before the Scottish parliament a few years ago.

parliament.scot/GettingInvo...

Click on the underlined links to read submissions.

There is a PAS support group in Scotland.

pernicious-anaemia-society....

There is a Thyroid support group that also has members with B12 deficiency/PA based I think in Kilmarnock.

healthunlocked.com/thyroidu...

No meetings during pandemic.

[Hidden]

You could try vitamin B12 patches. They are very strong, as the vitamin goes straight into your blood no need to digest it