Update blood tests negative for B12 d... - Pernicious Anaemi...

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Update blood tests negative for B12 deficiency

Cajswansea profile image
10 Replies

I just phoned up for my blood results and they said everything is normal. b12 and folate levels normal. I’ve requested a call back from the doctor cause I’m still feeling awful, still got the tingles, feel sick, exhausted, burning thighs and other symptoms.

I’m so scared what on earth is happening to me? I did take a high dose B12 supplement for a few days before the blood test. What if this had skewed the results?

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Cajswansea
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10 Replies
Nackapan profile image
Nackapan

Discuss with the doctor.

Is this your first ever b12 level?

List your symptoms. 5 that are most awful. Helps doctor.

Ask for actual printout.

On the phone ask for levels and in what range.

Was your thyroid tested ?

Ferritin?

Iron panel

Vitamin D

Ask what to do.

T C

Cajswansea profile image
Cajswansea in reply toNackapan

He said my TSH was slightly elevated and thinks it’s viral. I mentioned the loss of my sense of taste so he wants me to get a test for Covid.

My B12 levels were actually in the 500s and folate was also good think he said 12. He thinks it’s a mixture of viral and stress and anxiety and if the symptoms don’t resolve in two weeks to ring back.

fbirder profile image
fbirder

Ask the doctor what he means by normal. Does he mean "It's right at the bottom of the range, but just inside it" or "It's well in the middle of the range". The former means you may well have a B12 deficiency, the latter means you almost certainly don't.

The only way taking a supplement could make any difference is if you do not have an absorption problem. Then you will have absorbed some of the B12 and it will have raised your blood levels. That would be great news, you just have to keep taking the supplements, ot change your diet so that you consume more B12.

cocoa profile image
cocoa

Do you have online access with your GP?

You should be able to view these results online. If not, you can request to have access.

Cajswansea profile image
Cajswansea in reply tococoa

No I don’t have online access but my B 12 levels he quoted are perfect in the 500s. So I’m back to square one.

Cajswansea profile image
Cajswansea

Ive ordered B12 patches to try in case and I’m having a Covid test in an hour cause my sense of taste has vanished

Nackapan profile image
Nackapan in reply toCajswansea

How did you get on?

Cajswansea profile image
Cajswansea in reply toNackapan

It was negative

Luac profile image
Luac

I think the oral b12 may have skewed the results, you should mention that to your gp for sure and request another test making sure you havent had b12 for a while - ask your gp hpw long. Maybe somebody here knows.

You can have b12 in your blood that is not functioning.

After six months of treatment I was asked to take another test which came back in range so I was told to stop treatment. I was back at square one in no time.

PointOfReference profile image
PointOfReference

Hi Cajswansea

I was reading your post and could relate to what you went through.

How are you now? Have you improved with self medication and B12 supplements?

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