My neuropathy has decreased that It's barley noticeable at times. Stress and inactivity increases it though.

[Geckowacko]

Why? I don't know.

I might to start to believe a 100% recovery might be around the corner somewhere.

Some changes I've made though,

I've increased my injection slightly these past two months.

I noticed major change in increasing my exercise regimen followed by ice baths, cold therapy and breathing exercises. More stretching, also the shoulders en spine decompression by hang therapy. What I'm trying to do is increase blood flow and the nerves ability to glide better by stretching. I think it's been paying of really good these past couple of weeks. My energy levels increased significantly too, that's why I can increase my regimen.

It's weird, just slight tingeling currently, it seems the last couple of weeks it goes quick all of a sudden.

Did anyone experience a sudden shift to when it comes to healing?

[Nackapan]

I've no idea what alot of that is.

I will look up hang therapy.

I've had shifts in symptoms but am not healed.

Sounds like you are doing well with your regime.

[Geckowacko in reply to Nackapan]

How long have you been in the process of healing? Since May two years for me.

When neuropathy goes to its tingeling stage and I mean tingeling as the main symptom. It's a sign of the nerves growing new axons, which means they are healing.

Pain and numbness is irritation of the nerve. Pain is the inflammation and nerve numbness means the nerve is close to dying. It's damaged so far it can't even sense pain, so it becomes numb. Tingeling is regeneration of the nerve or the nerve it's attempt to.

[Geckowacko in reply to Nackapan]

I read your story and can see the worst symptoms we're about 2 years, it might still take a while. I'm not 100% healed yet too and I'm much younger of age, currently 31 years old.

It might take more time cause of the age, but I would advise you find more exercise in your regimen. Have you thought about swimming? Safe and good for cardio and movement. You need that blood flow to reach the nerves, a heart pumping 120/140 beats is fine, it's already cardio and you will improve your cardiovascular system.

Also the homones released and it's ability of being a natural painkiller is of great benefit.

Follow a Fodmap diet and try to avoid as much inflammation.

Wim hof method works against inflammation, but it's pretty extreme and requires allot of mindset.

Yoga to keep the muscles and nerve plus joints in a good mood.

I take about 2 to 3 Hours of exercise a day to treat myself. It ain't easy, it requires willpower.

Don't lose the healing mindset, placebo and motivation is key for healing too. Treat your body the best way you can and it might pay you out healing benefits in the long-term.

Good luck on your healing journey.

[Nackapan in reply to Geckowacko]

Thank you.

I've a strong will and the

right mindset

If I try and do more I'm bedbound.

I walk 1/2 a mile

I've tried more .

It's not a matter of will power.

If I push too hard I get horrendous headaches.

I used to swim regularly

That is out of the question at present unless I had a pool in the garden.

I cant even tolerate the artificial lighting .

I've worked on wasted muscles from inactivity.

Im doing all I can

Hence the frustration

Am thinking Occipital Neuralgia

I'm waiting to see a neuro Opthalmologist too.

Thank you for your ideas

You are right some things do take longer to heal with age .

[Geckowacko in reply to Nackapan]

I had terrible migraines/headaches and they disappeared with cold therapy, cold showers and ice baths. I think I had headache after the worst of B12 for almost 1,5 years everyday. Major migraines for three months non stop.

migrainekey.com/blog/10-rea...

Worked for me.

[e66-- in reply to Geckowacko]

How long have you been doing cold shower/bath?

I've done it daily since March. Less anxiety for sure. But still poor immunity. Do you think it will help in time. Patience is not my biggest asset!

[Geckowacko in reply to e66--]

It's not just cold showers and ice baths

It's breathing, mindfulness.

Exercise (movement, cardio, strength) and stretching techniques (Yoga).

It comes with a whole package, you want a stronger immune system? Then beat the crap out of that immune system. You need to stress the immune system the right way to get benefits. By these things listed above, find ways to make your autonomic immune system stronger, better and more stress resistant. Not an easy road, but might be the road to happiness.

It takes allot of time, we're talking years and consistency, everyday you work on it, no matter what. You get lazy? You get right back in that place that's called being sick all the time.

[Nackapan in reply to Geckowacko]

I'm really pleased it worked for you

I was told there are about 26 sorts of headaches.

They coukdnt make up their minds what mine were. The migraine type more consistent with Occipital neuralgia. The worst of those were I think about acyest. Them another neurologist with the shift thought nuchal muscles conti usually contracting si chronic ongoing tension headaches which were different and continuuous in different forms. I'm trying to treat the constant changes as a positive sign as have not had one symptom free day yet or even hour.

My tolerance level of pain has got higher. The pain mostly although constant nothing like at the beginning when I felt I was going into a fit or something as body would spasm and pain would g8 yk my spine .

I havent tried anything as intense as tou and coukdnr do 3 hours of intense exercise daily when well.

I was active busy . But never been to a gym and never want to. My exercise was cycling swimming walking cleaning ect.

Everyone is so different.

I'm doing cawthorne exercises still which are great for balance. Aksi pysio for my neck. I think the route of some of the problems.

I had virtigo and tk stay upright you use every muscle in your neck.

I also had falls .the last thing I was doing before a collapse rather than fall was standing on a stool reaching up cutting vines . No coincidence.

I've also an old neck injury from a childhood accident ot perhaps as I've a long neck it's a weak spot??

Do you go somewhere for all thses therapies or do you do them at home. ?

When things open again I intend to try more things I can find locally.

I do use hot and cold compresses on my neck if its locked.

Well done to you for finding a way that has helped you.

How often do you need to inject b12 ?

You must be very fit.

.

[Geckowacko in reply to Nackapan]

Inject B12 three times a week now 1000u.

The doctors you're consulting thought you were crazy at first and said it's probably anxiety, hypochondria, etc etc. When they couldn't find a cause.

Now they are telling you, yeah there are like 26 different migraines. Sorry, we don't know what to do with you. Why would you still consult such clueless people?

Beware of the psych med prescriptions. They might put you in a way worse spot then you are now. Had to fight a benzo addiction, which can be harder and more painful to quit heroin, be careful.

I would treat your migraines with cold showers and build to ice baths, I would keep exercising no matter the pain, dizziness, vertigo, trust me I kept going to. You're more capable off then you think, actually when I had migraines I would exercise hard. The first half hour would be brutal, but after increased blood flow and the painkilling hormones the body releases with exercise the migraines got more tolerable or sometimes even disappeared.

Healing is a tough and painful journey, but inaction like allot of people choose when in pain. Keeps you right in the same place and with no improvements. Also acceptance which is the hardest part of for me at least to achieve might be key. I can't accept this condition, that's why I fight so hard, I can't accept it, it's not a part of me, but yet it is.

I hope you can find acceptance somewhere. This is the thing I struggle the most with.

[Nackapan in reply to Geckowacko]

No I'm not accepting.

I'm a fighter

I di try and take each day as it comes

My pain is nor of the migraine sort now I dint think . I've had many shifts.

More like Occipital neuralgia. I thought this a year ago.

Yes im keeping up the injections. Off all other medication apart from painkillers when needed.

Exercise is your drug

A good one at that.

Like I sat it's not a matter of willpower . When I had virtigo I could walk let alone do exercise.

I did pysio in bed.

I've moved on as that was 2018 early 2019. I just feel stuck at present as symptoms very varied what works to a degree one day dosent thr next.

I'm hoping my brain is recalerbrating

Take care

[Wobbly86]

Hi I have found that exercise makes me feel awful and depleted my b12 quickly returning neurological symptoms.

I’d be really interested if you could share your routine and diet as I love exercising and have recently stop through fear of feeling worse.

Where did you find advise on exercise and diet?