Any body else's symtoms: Does any body... - Pernicious Anaemi...

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Any body else's symtoms

Mozza127 profile image
11 Replies

Does any body who has b12 injections have bowl and bladder problems..feel consipated sometimes

My wind is different also get tummy ache in pit of tummy...got injections down to every 8 weeks now because of pins and needles in fingers and feet and can't close my hand in morning properly ..also elbow pain and joint and pain in right armpit...is this happening to any one else.

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Mozza127 profile image
Mozza127
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11 Replies
snowbird1234 profile image
snowbird1234

did they check your B6 & B9...?.. B9 you get from eating green leafy vegatbles, it helps B12 some how... LOL... it is what I have to eat every day...

Praying for You

Nackapan profile image
Nackapan

Have you tried an acidic drink of cider vinegar with toud meal? Lots of water too. Do you think every 8 weeks is enough ?

Mozza127 profile image
Mozza127 in reply toNackapan

No I haven't. ...I'm knew to all the symtoms. ..as they got worse manged to convince my doctor down from 12 to ten and now from ten to eight...just seem to feel worse.

I have started taking b12 tabletts. ..my toungue calmed down after a week of taking these. ..

Nackapan profile image
Nackapan in reply toMozza127

The lots of water is not with meals but through the day!

Good the b12 tablets have helped. Also when you get bloods done include

Vit d

Ferritin

Iron studies

Thyroid

Folate (as already suggested)

Anh other vits of minerals

So you can take whatever supplements needed

LittleA profile image
LittleA

I have had both from constipation and peeing a lot or not able to go at all. At one point I had to self catheter which was not pleasant and urine infections.

I notice I get pain more near the due date of my b12 and I pee lots more and have an upset stomach but then it get better after.

Make sure you get your folic acid checked too I found mine low and on tablets so if your finding your self fatigued it would tremendously help and may help your pins and needles too

Hope this helps :) x

Ritchie1268 profile image
Ritchie1268

My pins & needles in my fingers got worse after starting injections, along with my feet, which started with just tingling at first, then turned painful when walking, as if I had pebbles in my shoes.

Neurologist said it was small fibre neuropathy with nerve damage in my feet from lack of B12.

I've been self injecting every other day for over a year now after GP wouldn't increase frequency, even after my nurse said I should be getting every other day injections until symptoms ease.

I rarely get the pins & needles in my fingers anymore. The painful feet have eased very much, though I do get flare ups if I do too much.

I suffer with the opposite of constipation & my stomach always sounds like a drummer from a rock band playing!

But overall I feel the best I've felt in many years.

After joining this group & researching, I learned that symptoms can get worse before getting better. Very true in my case.

Fearn5 profile image
Fearn5 in reply toRitchie1268

Hi, where do you get your B12 from to self inject. Glad you feel lots better

Ritchie1268 profile image
Ritchie1268 in reply toFearn5

Thank you.

I get my ampoules from Germany. Bodfeld apotheke or versandapo (apologies as I can't remember the exact spelling).

There is a really helpful post on here by wedgewood who really helped me & has helped many others starting out & not knowing what to get or where from etc.

If I remember correctly, the last lot I bought were on offer, I paid around €59 for 100 ampoules with €9 delivery & they arrived in 3 days. The needles & syringes etc were from medisave here in UK.

Everything you need to know is in the post by wedgewood.

I'm sure they will point you in right direction when they see this if you can't find the post 👍

Fearn5 profile image
Fearn5 in reply toRitchie1268

Thank you so much. I will contact them ASAP. That’s so useful. Take care and hope you keep feeling better

Mozza127 profile image
Mozza127 in reply toFearn5

Just woke up with servere pins and needles in both hands and struggled to close and grasp right hand...driving me mad..of for my injection at last thanks guys

Ritchie1268 profile image
Ritchie1268 in reply toFearn5

You're very welcome. Thank you & good luck.

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