Why new symtoms : I have 10 weekly... - Pernicious Anaemi...

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Why new symtoms

Mozza127 profile image
3 Replies

I have 10 weekly injections but I've stopped taking my oral b12....1000 as I have hemotolgy on thurs and I want to find out what is causing back pain and bad tummy and rather be symptomatic been of them two days and my wrists are hurting when I try bend them back or clench fist...spine x rays fine and chest x rays fine yet still back pain..roll on thurs.

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Mozza127 profile image
Mozza127
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fbirder profile image
fbirder

Two days off oral supplements should have no affect of B12 levels or symptoms.

Mozza127 profile image
Mozza127 in reply to fbirder

I'm new to b12 ever since I started injections which doctor ordered after random blood test 8 months ago my symtoms are worse and more issues .starting to think its not b12with thanks

pvanderaa profile image
pvanderaa

There are some symptoms of healing nerve damage that are very counterintuitive. The symptoms arise in the two-three day window because that’s how long it takes for the brain to recalibrate to the stronger signals on the nerves.

Start a logbook of all your symptoms and assess a severity score to each on a daily basis. Reset the day counter to day zero with each jab. When making a comparison, compare the severity of day two to the same symptoms in day 2 in a previous cycle. Day to day comparisons only confuses because it’s like you are on a roller coaster ride.

When they get B12, the cells of the body go into overdrive working off the backlog of metabolism that has built up from the deficiency. This floods the bloodstream with the byproducts, mostly CO2 and water but it takes a while to filter this out. Headache, anxiety, loose stool are some of mine. Increased pain is another.

Balance issues could be the nerves of the ear, but more likely the vagus nerve to the stomach. The upset stomach is from the excess acid brought on by the stimulation on the vagus nerve. Increased pain is another.

I’ve found from my logbook that the more deficient I became before the jab, the stronger these symptoms were after the jab. It really meant that I needed more frequent injections.

Provide a typed and dated list of all your symptoms to your GP, explain what you are doing and ask for the list to be included in your file. You are providing the evidence that the GP needs to increase your injections.

You will most definitely be fobbed off and treated like a total hypochondriac. Especially if you keep finding more symptoms that are related to the B12 injection or show up just before the injection.

In my case, the GP wanted to treat me for anxiety with antidepressants which just made matters worse and left me with tinnitus and several other side effect symptoms.

If you can think of the post jab symptoms as “good”, and this is hard, the symptoms seem to go away faster as you allow your brain to recalibrate faster. Stress out about them and worry seem to slow down the recalibration and make matters seem worse.

With the logbook, once you know what symptoms to expect, you can tell yourself that it is okay and just log it again the next month (cycle). Symptoms disappear as well and you only realize this when something occurs to set you back and then you realize that symptom has returned but was in fact gone for a while. You monitor progress this way because nerve repair is extremely slow.

Gentle exercises, especially range of motion exercises, can help stimulate the nerves and the brain figures everything out faster. Laying in bed is the natural inclination because getting started is hard. Once you get going, things seem to get easier.

I’m currently self injecting weekly with cyano B12 and take daily methyl B12 sublinguals to fill in.

Are you taking a daily multivitamin and folic acid to support B12?

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