You all very kindly helped me with my first question here the other day so I was wondering if I could ask for a bit more.
Tomorrow I have got an appointment with a neurologist. I'm going to show her my blood test results and hope that she will do something about my low b12.
I have read so much great information on here but I'm a bit overwhelmed (I'm also from Spain so English is not my first language).
Since I have an anxiety disorder and have terrible anxiety and health anxiety my two main concerns are:
- I have read that certain types of B12 can make anxiety worse.
- I have read of some people having reactions to the injections and something about it lowering potassium and that it can be dangerous.
So my question is (as if she's going to let me choose lol) which form of B12 is least likely to cause extra anxiety and allergic reactions??
Thanks in advance
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A few people (me included) have experienced bad side-effects with methylcobalamin, including irritability and anxiety. But it's more likely that you'll be offered cyanocobalamin which is much less likely to cause a bad reaction.
The very good news is that you do not need a doctor's prescription for cyanocobalamin injections - see this thread healthunlocked.com/pasoc/po...
If you have had macrocytic (large-cell) anaemia then you might get low potassium as the body starts to make low red cells for the first few weeks. Follow Nackapan 's advise.
I've been lucky and the B12 injections do not give me any adverse effects.
I will say though I saw a young neurologist who did all the bodily checks and balance checks. But when I asked her about the B12 deficiency side effects, she hadn't got a clue! I was quite shocked and dismayed, she was a doctor!!
Anyhow she scheduled me an MRI on my head and neck just to be sure, as I had tinnitus as well, and it was all clear.
Hasn't taken away much of my anxiety, I am working on that myself!
Make sure you ask all your questions, write them down, good luck and let us know how it went!
I'm here waiting for my appointment. I live in Barcelona (but my Dad was Welsh). I do eat plenty of meat and above all eggs so I doubt it's diet related. Anyway I'll soon see what she says, I'll come back and inform. THANK YOU all
Well what can I say? Glad because she has written a letter for my GP to give me B12 shots, but that was only because I asked for it, she said my B12 was only marginally low at 155. She said something about them giving me folic acid in the shots too?? Even though I haven't been tested for folic acid deficiency. Would this be correct?
I asked her if my symptoms could be because of b12 deficiency and she said only the paresthesia. So I asked if the exhaustion, difficulty walking, shortness of breath etc could the be because my iron and vitamin d are low and she said "unlikely because you're in range"....but she has sent me to a neuro-muscular doc (appointment for jan 17th)....soooo, not great but at least I should be starting my b12 shots sometime soon.
Oh and the doctor asked me wether I have trouble swallowing which I do, and she asked me a lot about this, so now a bit afraid what that might mean.
I just want to add that you might read a lot of negative comments about cyanocobalamin online.
But I had twenty or more symptoms disappear within loading shots, using cyanocobalamin. And I feel fine on it. I will check my gfr in a couple of months (one kidney.). As there is some talk about the very low levels of cyanide. But simply checking to cross out any concern, that's all.
The swallowing. It is listed as a rare symptom of b12 deficiency. But I had it and it disappeared during loading.
Do know that things *might* get worse before they get better. Especially early on.
I wouldn't give much credence to asking a gp if this symptom or that is b12.
I share symptoms with my gp mainly for other patients' well-being going forward. I sincerely don't get doctors not being open to symptoms that simply vanished with b12 shots, after years of no resolution (not to mention medically documented, found within a few minutes of research). It's bizarre and quite frankly irresponsible to be so incredulous.
Heartbreaking to think about how many lives could be changed if one's ego took a nap.
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