Help with asking for frequent jags - Pernicious Anaemi...

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Help with asking for frequent jags

Rdbib profile image
3 Replies

Hi there,

This is my first post. Very pleased to find this site as I have felt like I have been going a bit mad. I have been having 3 monthly b12 jags for around 2 years or so. I have become much more aware of my symptoms and have realised that I am starting to feel them around 6 weeks after my jag. I am now almost 8 weeks since my last jag (which I got 2 weeks early as asked my nurse if it was okay)

I am seeing my nurse today and hoping that she will allow me to have my jag even earlier. I'm quite nervous that she is going to say no, I do have a doctor's appointment for next Friday so that I can ask him if I can get it more frequently.

Any hints and tips about to approach this would be really welcomed. I'm so fed up feeling like this and with 2 children to look after I feel like I am just about surviving. Thank you in advance :-)

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Rdbib profile image
Rdbib
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Nackapan profile image
Nackapan

2 monthly should be available now. Bnf guidelines. Look at other posts . The doctors should look at your notes and symptoms and treat you. Good luck and I hope you get better health

clivealive profile image
clivealiveForum Support

Point your doctor toward the latest BNF Guidelines below:

bnf.nice.org.uk/drug/hydrox...

Make a list of your symptoms and present this at the appointment - don't rely on your memory.

I wish you well

FlipperTD profile image
FlipperTD

Hi. This is my first post. I hope I can help. Dietary B12 requires Intrinsic Factor [IF] to allow absorption from the gut. The introduction of injectable B12 saved countless lives, as it bypasses the IF stage. Once the production of B12 was 'ramped up' it became possible to use 'mega doses' orally. Instead of needing IF, the high concentration of B12 in the gut lumen facilitates its absorption from the gut into the blodostream across a concentration gradient. Any excess is then excreted. There's plenty of published, peer-reviewed evidence that oral B12 works regardless of the IF status, or even in the presence of IF antibodies. It simply requires regular [ie daily] tablets rather than infrequent injections, and you're back in charge. Once you've been written up for B12 injections, you're likely to be on them forever, as it's unlikely that anyone will ever reconsider it. Do some research and talk to your doctor. Good luck.

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