New here and desperate for advice

[Ronnocs]

I'm new here and felling lost. B12 at 165 but GP won't treat as I'm vegetarian (eat LOADS of eggs + other dairy and Marmite!). Up to 2yrs ago, was receiving injections but these stopped when I had a blood test that showed a higher level of B12 after months of talking iron supplements for plain old anemia. I'm beyind exhausted, have tinnitus/leg pain/terrible mental function. My mother had PA, as well as other auotimmine issues though my test for intrinsic factor is negative. I'd be grateful for any advice/info as I feel like I'm loosing the plot!

[clivealive Forum Support]

Hi Ronnocs sadly the Intrinsic Factor Antibodies (IFA) test is unreliable in that it gives false negatives in people with PA half the time. So a negative result doesn't mean that you don't have PA. However, a positive result is a sure-fire, 95% certain indicator of PA.

Is your doctor aware that P.A. can be inherited? Perhaps you should push for a re-test.

You are obviously not absorbing enough B12 via your digestion. Has your doctor not suggested supplementing orally?

Personally I use a methylcobamalin B12 spray between my 3 weekly injections which seems to "boost" my energy levels. These can be bought online or over the counter.

Another alternative done by many in this community is self injecting.

I am not a medically trained person but I've had Pernicious Anaemia (one of many causes of B12 deficiency) for more than 46 years.

I wish you well.

[Ronnocs in reply to clivealive]

Thanks so much for sharing this information. I'll try the spray you've suggested and hopefully, if my energy improves, I'll take my GP on again.

[clivealive Forum Support in reply to Ronnocs]

Please remember this is only my personal advice