Its come to my attention that i have not been active on this forum so i thought i would provide an update: im doing really well!!! Still taking B12 every 2 weeks and self inject when i can not get out of my northern forest. Iron absorption is still an issue so take monthly iron infusions at my oncology center. I found lactose an issue with my gut so am off dairy and that really had an impact on my gut issues plus my weight dropped drastically. My energy levels are high and still cross country skiing, snowshoeing and dog sledding winters and hiking the wood in warmer weather with my border collie. I had even helped a friend build a cabin from the ground up this past summer. It was just the 2 of us doing framing and live edge siding and interior wood paneling. That my friends was hard work but I was up to it! So CliveAlive, i am going on 67 this year and feel more alive then i have in the past 3 years. Hoping all who are on this site find comfort, a place of hope and all get the treatments you need and deserve to survive PA. Prayers for you all and my very sincere thanks to everyone who offered me the same comfort and hope.
With love in my heart,
CH52
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CH52
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Hi snowed under @ch52 it's good to "see" from you again and to read of your health improvements.
I too have gone "lacto free" during last year following diagnosis of "exocrine pancreatic insufficiency" and prescribe Creon enzyme capsules and encouraged to eat yogurts.
Well something seems to be working as I'm still "clivealive" at 77 - you're catching me up
Clivealive, you sir, are my inspiration! Your positive outlook helped me to focus on what was good in my life after I got this PA diagnosis and I believe a positive mental outlook helped me tremendously in coping with the lifelong inconveniences of this condition. So yes, I'm trying to catch up to you!!! There is hope and life after this diagnosis. I'm making the best of it!
Hello CH52. How lovely to hear from you and so pleased that you’re doing so well.
If I recall, last time we spoke you were at risk of loosing a winters worth of food due to a dodgy fridge and wonky Admin, were rescued by a car mechanic and a kindly retired somebody who fixed all for you, had been taking care of your poorly mother...and were suffering from a nasty persistent sinus infection etc.
And now we find you cross country skiing, snow shoeing, dog sledding, hiking...and building a log cabin with a friend. So things are definitely looking up 😉😀.
I'm truly in awe and so delighted that everything is going so well for you. And not a little jealous of your log cabin in snowy climes 🙄😀.
Feeling more alive - fantastic - and you’re proving it every minute of every day.
Sincerely hope that the winter treats you kindly...and that your energy levels continue to serve you well....or should I say that they keep up with you...'cause I certainly couldn't 🙃.
What a inspiration to all...especially to those who may be newly diagnosed and perhaps wondering if life can ever return again...well...you are that proof.
Hello Foggyme! Yes at that point in my life it seemed everything was working against me! I survived it all! It's tough when your brain isn't thinking clearly (foggy brain,) and how quickly you can succumb to feeling sorry for yourself when dealing with life and then a condition like PA that most people do not understand or even heard about! And don't forget the exhaustion! I had to readjust my thinking and started writing things down more so I would not forget and it became a daily plan and journal that I could refer back to and it kept my thinking clear and once that happened I regained my confidence and got my life back. I learned to be kinder to myself and if I couldn't go like my old super woman self I settled for slower but steady. I built my muscle strength back slowly but I did not get discouraged and kept at it daily. When I was first diagnosed, I myself was trying to understand everything that was happening to me both physically and mentally and that's where this forum was able to help me tremendously. Again my thanks to all of you!
By the way, I will always have to deal with numbness and iciness in my hands and feet and pins and needles. My oncologist told me that at this point in treatment that neurological damage is most likely permanent but hey! I can deal with that!
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Update on treatment
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Does Si everyday deplete iron/stores in the body
