I thought I’d update as I have had such good advice here on the forum and learned a lot!
I had previously been stopped treatment by my new GP after moving house when my B12 levels were measured and found to be above the range, although I was very symptomatic and had been supplementing sublingually, as I was overdue my regular 3 monthly injection. He also referred me to the Consultant Haematologist whose medical secretary I was 20 years ago.
On the advice of you lovely people I got some B12 and started to SI, and symptoms are slowly improving.
Today I had my appointment and the Consultant was on holiday so I saw one of his junior doctors who agreed with me, agreed to write to my GP and explain the guidelines (including that I should be on 2 monthly injections) and explain that a high B12 is to be expected and further testing is not required. He has also referred me to an endocrinologist for my gastric and hypothyroid symptoms as my TSH is a little high and I need to be on a higher dose.
I am so relieved I cannot tell you, I went in there expecting a fight with my copy of BCSH and HEY guidelines and didn’t need them at all!
Thank you all, now fingers crossed he actually writes what he said he will and my GP takes notice!!