Hi all am a 55y old female live in Scotland and was a staff nurse for years, had to take early retirement due to a diagnosis of MS in November 2014. I have a younger sister who had been diagnosed with MS 30 years ago, so knew the signs and symptoms. I have a 33y old daughter who has 3 young children, and she has stared to have symptoms that I now recognise from my early years. I had minor symptoms for years and made all sorts of excuses regarding causes. Until the minor symptoms became major ones. Eventually ended up numb from the my feet to my bust, had problems seeing, walking, eating, drinking, bowel, bladder problems ect ect ect. I have read and tried all sorts from MS medications, diets, nutrition, excersises the past 3-4 years. In fact sick of researching but can’t do much else as limited with every day life. I got fatter and more debilitated, look older than my years and feel about 104. That’s my life in a nut shell. Now for the real miracle, Although I knew about B12 and PA, and most of the problems associated with lack of vit B. I have recently discovered the true meaning of B12 deficiency, with research and investigation, and ignoring my Dr I have commenced on a mission to take control of my own health and well-being. No more toxic MS drugs, start healthy eating, stop smoking, take regular exercise, commence B12 injections, folic acid, potassium, iron.
Now Iv had every symptom, pain, numbness, brain fog, anxiety ect ect you can image, and when you start taking B12, which you must flood your body with as it has been depleted of B12 for probably years. Your nervous system has either shut down, or certain areas became inflamed. You begin to get all the symptoms that you forgot about as the nerves that can be saved, or reversed start to flare up and become alive again. I have just started B12 injections, folic acid, iron and potassium 5 weeks ago. I commenced 1mg/1mL of B12 hydroxocobalamin injection every 48hours for 2 weeks, then one injection weekly iron, potassium, folic acid daily. I have to continue the B12 regime until symptoms disappear. Then monlthy injection. The longer the symptoms the longer the recovery. I have not had bloods checked by My GP for over a year, in fact since I completed a course of cobalamin tablets for low levels. Am a natural red head, have very pale skin, bruise easy, iron levels have always been on the lower side most of my life. Oh how blind was I..... you trust your Dr when he gives you Meds hoping they will make you better. It’s not really their fault, they have protocols and guidelines to follow and they do this to the letter usually.
Since starting this regime I can now get out of bed, can see property, brain fog gone, can think more clearer, have more energy, although it is early days for me and I will continue on this pathway until my health improves hopefully 100%. My made daughter go see her GP, bloods showed low levels of B12 folate and iron, they gave her folic acid tabs and iron tabs and sent her on her way. I have now just recently started her on my supply of B12 injections and within 2 jabs she has started to notice her symptoms deplete and her health improve.
While Researching B12 insufficiency i came across an American Nurse called Sally Pacholok she is an Er nurse who takes on the establishment and uncovers an epidemic of misdiagnosed B12 patients. Not just pins and needs and numbness, but MS, Parkinson’s and a whole host of central nervous system disease. Check her out on you tube for more information, this will give you an insight into how B12 diffidence can take over your like.
There is also a B12 Diffiency charity support group on B12 org, they have a very informative fact sheet to follow with your symptoms.
Most Gp will not prescribe B12 unless you have PA, and if so they only prescribe monthly or 3 monthly injections. For those of you outside GB your medical insurance may not cover B12 injections at the above rate. Hydroxocobalamin 1mg/1mL is less than a £ to buy. I source my B12 injections from a company in Germany they deliver world wide. I ordered 40 injections at a cost of £41.20 tax and delivery included. Www. VersandApo.de is the link for B12 ampoules, get your needles and syringes from EBay.
Remember everyone you can not overdose on B12, your body will let you know when you have the required amount to function normally. Hope this information will help anyone who is interested in my story, good luck to you all and happy health with B12.
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