Hi all! The latest in my ongoing health saga is that the latest blood test has shown creatinine kinase levels above the normal range (mine has come in at 299 U/L). I know this can be related to muscle issues but wondered if it can be specifically related to B12 deficiency.
I still have no diagnosis, have seen a neurologist, haematologist and lately a rheumatologist (who asked my GP to conduct a full range of blood tests, much to the GP's annoyance!!). I am SI once every month and find that I am able to do light exercise again. The usual good days and bad days but trying to adopt a more positive approach as I fear I was slipping close to a depression a couple of months ago, which might have been down to quitting all exercise because of the fatigue and general all over back pain, or simply down to GPs nor taking me seriously and frustrating the life out of me!
Anyway, any help and guidance much appreciated.