Hi. Back with update..

[maypole66]

Hi. I joined about 6 months ago. I posted blood results.Dr insisting I was " in range ". Especially grateful to you all for advice over this time. After a lot of perseverence and digging my heals in with Dr. She eventually sent me to a Rheumatologist. I was not happy about this, because she was basically telling me I had Fybremaralgia. Apologises if not spelt correctly. I saw Specialist, lots of questions, flexibility examinination etc. She was surprised how flexible I was, in fact more than she could do!! Hence wasting her time and mine basically. I went back to Dr. By this time I was having so many blood tests I felt like a " blood donor " started knowing nurses and phleabotonists by first name terms. Even they couldn't understand WHY Dr would not give me B12 Injections!! Well about 6 weeks ago I once again Sat in Dr room, armed with all my info from here and Thyroid forum ( she knew I was on internet getting advice ) ... She basically told she didn't know where to go with me anymore!! So, I begged her to give me a dose of B12, telling I could not overdose. SHE AGREED...YES you read that right she agteed 😀😀 ... But I understand that it was " loading dose " 6 injections over 2 weeks. .. I was ecstatic. I have had them. The difference is greatly noticed already! Brain fog lifted, blurry vision slightly improved, I still get pins & needles in arms, legs, my bowel movement is gradually improving ( was only going about every 2 weeks, tben with herbal help ) etc, but not as painful. My libido has improved, much to hubbys pleasure! ... I am going to book myself in for 3 monthly injection. Even though not had clearance on this, because Dr said the loading dose was a " trial ".. My ankles are still full of fluid, no weight loss, brittle nails, liberated mouth, hoarse voice, unable to clear my throat, particularly first thing in the morning. So last week I saw another Dr, well I am definitely not a violent person, But I could have truely slapped her. She was patronising, talking to me as though I knew nothing, ( don't think she liked the fact I had been on line ) She said she would not have agreed to B12. Also she said people have more swollen ankles than me, she said people sweat... I said what, dripping wet for the last 10yrs???...So I need your help again please, Will I supposedly feel more benefit over the next 12 weeks awaiting my next B12. Or shall I take my B12 spray supplement daily as I was previously. Even though I have been given the injections, I do not feel it was a victory. I had to fight and beg for it. I still feel think when Dr finds out that the nurse told me to book for next one in December she will cancel it... Sorry for essay...

[Sleepybunny]

Hi,

I thought this link about writing letters to GPs about B12 deficiency might be of use (UK info).

b12deficiency.info/b12-writ...

I'd suggest keeping a diary of how your symptoms have improved since having b12 injections and also tracking any deterioration in symptoms over next few weeks/months.

There may be some useful info in the links I put on another thread of yours

healthunlocked.com/pasoc/po.......

[maypole66 in reply to Sleepybunny]

Thankyou. Yes I will look this up. Like many of us, we confront the Dr with info, then it never comes across correctly. Since writing this this morning. I have received a text message from the Surgery to have my bloods done again! This is to see if they will give me further injection in December. I fear they won't because they didn't want to give me this " trial " loading. So fed up