2nd jab : Hi all I'm on my 2nd jab our... - Pernicious Anaemi...

Pernicious Anaemia Society

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2nd jab

Glitterbug83 profile image
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Hi all I'm on my 2nd jab our of 6 feel no different atm but my level was 93 so not being to impatient lol.... I'm debating to take time off work to recover and rest but un sure if it's best to keep busy? Anyone else done this? Thanks

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Glitterbug83 profile image
Glitterbug83
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Av42 profile image
Av42

All the time I was having the loading doses I felt much the same as before I started having them , luckily for me I work in a school so we broke up the day of last loading as for about ten days I did feel pretty rough but still got out and about and feel that I could have managed work but would have struggled through. I would suggest maybe speaking to employer and seeing how it goes . As you have been so low you may wish to save time off for when you feel well enough to enjoy it . I'm feeling pretty good still at moment and haven't had a quiet holiday. Have been to Disney world going on rides and spending twelve plus hours a day walking! Hope all goes well for you 😊

clivealive profile image
clivealiveForum Support

In 1972, I was a registered disabled, 30 year old father of two girls under 5 and a sick wife who had heart problems when I eventually got my diagnosis of P.A. after two "Schilling's" tests by which time I was a walking Zombie.

I'd had gastric surgery in 1959 for a perforated peptic ulcer and my health really started "going downhill" in the mid late 1960s and was "off work" (as an electrician) for nearly three years until in September 1969 I was sent on a five months Government sponsored "retraining" course in book-keeping and accountancy. I left college Princeton College, Holborn, on Friday 13th February 1970 and started a "new job" as the book-keeper for a multinational office supplies company the following Monday.

The first (inconclusive) Schilling test in 1968 involved having a huge dose of B12 injected and I've often wondered whether (unknowingly) this helped me struggle though the next three or so years studying in London and then starting the new job.

My health deteriorated further and my doctor took a gamble and sent me for a second (unheard of) Schilling's test which thankfully proved positive for Pernicious Anaemia.

When the results were known I was called in to see the doctor.

It was on the Wednesday afternoon of 10th May 1972 that I duly presented myself at the surgery and Dr Wool greeted me with the words “Do you want the good news – or the bad news?” I said that perhaps she ought to give me the “bad news” first. She replied “The bad news is, that you’re going to die – and you’re going to die within the next two or three years”. Naturally I was somewhat rather keen to know what the “good news” was. So I asked her what the “good news” was.

She said, with a mischievous twinkle in her eyes, “The good news is you’re not going to die within two or three years if you have regular injections (of vitamin B12) from now, for the rest of your life".

I felt I was "walking on air" as I left the surgery that afternoon - at last I knew what had been "wrong with me" for so many years and that there was treatment available.

More than 45 years later I still wonder how I managed to cope with two growing daughters, a sick wife, and a new job which I had learned on a "crash course" but I think it was the impetus of caring for my "girls" gave me that "kept me going".

Sadly my wife of 27 years died 25 years ago this month whilst undergoing open heart surgery but I'm still "clivealive" and over 75.

Dr. Wool, now in her nineties and a Dame for her services to medicine still lives locally.

Av42 profile image
Av42 in reply to clivealive

Your moving story gives us all hope for the future.

SusanLMckinney profile image
SusanLMckinney in reply to clivealive

I don't think one B12 shot can help anyone. if someone really have low B12 you have to address the reason why and treat over a period of time. If it's because of a stomach by-pass it should have been a course of shots for your life.

SusanLMckinney profile image
SusanLMckinney

What kind of jab are you taking? I had to take one jab of 1ml a day for a week I think, then I went to 2 jabs a week for a month, then 1 jab a week, then I went to one a month. My level was (0) none detectable by the time they found out. recovery is slow, nerve damage does not heal quickly. If you have breathing problems that can feel better in a few weeks. I would just go ahead and do what ever makes you feel better mentally. It can take over a year for total recovery if you have bad nerve damage. Some symptoms can take longer. I had a vibration in my system that I got used to and didn't notice until at night when I lay still and then it would stop for a period. I would notice when it stopped, I always called it "getting quiet"

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