Advice B12

[Pinkpeony]

After a fruitless talk to the Nurse who was giving my injection hinting at a need fora less than 8 week jab. Is there anything that is good enough to use in between injections ? I had to fight to have it reduced from 12 weeks ? New to PA . Thank you. Pp

[Nackapan]

You could buy your own b12 and self inject in-between your NHS ones .Why should you?

Ignore the nurse.

I've recently had trouble with s nurse querying my regime.

It's got to stop.

None if their business to query a regime nc treatment prescribed

If they want to learn fair enough.

It's not their job to stress us just before sticking a needle in!

I'm still waiting for that nurse to correct my notes

How dare she.

Write to the practice Manager or speak with your doctor.

I've done both snd sending emails

An 8 week b12 injrction is actually on the guidelines she/ he has not read.

Their ignorance.

Ask to ge taught to injrct yourself??

I have NHS ones and sc b12 Inject at home.

Lotdcof posts recently of people trialling oral b12 .

Just note it does not work for everyone even between injections and for those it does ,it seems you have to take very high doses over the day .

? 15000mcg has been stated.

Hopd you find a way to get what you need in a way your body can process it on the right amounts.

Minefield

[Pinkpeony in reply to Nackapan]

Thanks Nackapan. Will try oral first and return for advice if it doesn't help. Pp

[wedgewood]

Some PA patients do use oral B12 , nose and mouth sprays between injections, with success . ( useless for me though ) So why not try ?

But 100% success can be obtained by self -injecting often enough to keep b12 deficiency symptoms as bay , Required regularity of injections to keep B12 symptoms at bay, varies enormously from person to person — any thing from daily to 3 monthly and anywhere between . No one knows why this is , but it’s mainly because so little research on P.A. / B12 deficiency has been done ,

A B12 injection is definitely the most efficacious method for administering b12 . It is also really cheap at about £1.50 for all the components , namely —An ampoule of B12, an injecting needle , a withdrawal needle , and a syringe It can be administered by either the Intra Muscular ( I.M. ) or sub-cutaneously ( sub-cut).

But do try tablets or nose or mouth sprays , because you might be fortunate

.If you ever should wish to try self injection , you will get all the information that you need from this forum .

Best wishes .

[Pinkpeony in reply to wedgewood]

Thank you wedgewood. I'm almost 80 and I am more than willing to self inject. The off putting thing is the assembly it takes to get the dose ready. I will search the Web for what's on offer first to see if there is anything. Pp

[Rainbo06 in reply to Pinkpeony]

If you decide to go down the self inject route, get a small plastic tray a takeaway on is good enough put what you need in there look at them touch them become familiar with the way they feel. Take your time you're not in a race and over time it will become easier you can always try practicing with an orange drawing up what you need and then injecting it back in.

[Hidden in reply to Pinkpeony]

Search health unlocked top right...

Livewellsouthwest.co.uk b12 injections

This website shows you how to load syringe etc.

[Pinkpeony in reply to Hidden]

Thank you for that. Actually I feel so unwell since my b12 jab on Monday I'm wondering if it's worked at all. Thank you for the reply. Pp

[Hidden in reply to Pinkpeony]

How long have you been on b12 injections ?

[Clare184]

As everyone else has said self injecting is the best option and for me has helped so much, I also had to really fight for 8 weekly and the gp threatened to stop my jabs altogether so wary of pushing the issue anymore. I have also tried b12 spray, patches and oral supplements which make no difference at all. The only thing that might help me slightly but I'm still not certain is the sublingual tablets that you melt under your tongue seem to take a bit of the edge of the exhaustion sometimes for an hour or so. Also do you know what your iron and folate levels are usually like, I find that even taking these in a daily vitamin can help. Hope you find something that works for you.

[Pinkpeony in reply to Clare184]

Thank you. Will try the Web first. Pp

[Cherylclaire Forum Support]

As Nackapan has said, there is no reason for a nurse to make it difficult for you to receive your injection.

Guidelines state every 2-3 months after loading dose, but if you presented with neurological symptoms they should have started with every other day injections then only once no more improvement can be gained, continued with 2-monthly maintenance regime.

NICE guidelines are currently under discussion; queries and questions from a panel of experts with concerns - the Pernicious Anaemia Society are involved. You can read about topics being discussed on one of Sleepybunny's latest posts where a link has been provided. "NICE Guidelines -PA and B12 deficiency (UK)".

I once became so ill that my GP arranged for reloading at three injections a week, which was the nearest she could get to every other day. I actually never got more than two a week, as nurses could never fit me in.

The nurses' responses varied: one confessed to me that this was a first for her, so she googled "B12 and Toxicity" to ensure that she wasn't accidentally killing me, and was fine after she had checked for herself.* Others became anxious -and even suspicious ! Very difficult to cope with when ill .

My GP however was overjoyed as she could see improvements almost immediately, so this regime continued for another six months.

* B12 has no known level at which it is considered toxic. If you google as she did, you will find that it is used in hospital at massive levels to flush other toxins from the body. This nurse, far from killing me, was actually saving me from further damage. But she had to be sure first.

[Cinders70]

You could ask if they will give you cyanocobalamin instead of hydroxocobalamin. It’s licensed in the UK for use every 4 weeks. Don’t get too excited, it doesn’t last as long as hydroxo, and I still self inject hydroxo shots myself, but it has helped a bit.