Hi, I'm new to this board and I'm hoping someone can point me in the right direction. It's a long story, but I'll try to be quick!
I saw my GP in Feb last year asking for bloods/tests as I'm always exhausted (I wake up tired), I'm struggling to do my job properly (High school maths teacher) and along with severe environmental allergies, I'm utterly miserable and don't have the energy to ride my horse or do any sports which I loved doing. Bloods came back normal, FBC and Thyroid, so I was diagnosed with depression and put sertraline (antidepressant) for 6 months.
In February I saw my immunology specialist as I've had to stop the immunotherapy treatment for dust mite allergy as I was too ill, 2 chest infections, October and November, and then Scarlett fever at the start of January. I can't have the injection if my breathing is poor. I had a follow up in May to discuss further options and we discussed my fatigue, etc. He ran a full range of tests, including B12 and I got a copy of the letter to my GP 2 weeks ago saying my B12 is low normal, Creatinine 86 (normal 36-84) and potassium 3.4 (normal 3.5 -5.something) and to rerun tests. In between the blood test and the letter I started taking a daily B-complex supplement which contains 100μg of B12, I stopped taking this 5 days before my bloods were retaken.
Whilst waiting for the results I've looked up b12 deficiency and it explains a lot, including things I've accepted and normal to me!
slight numbness little and ring fingers of left hand
poor spacial awareness, regularly go over on my ankles, walk into things, mix words up
Dizziness - can be triggered by more than one person talking at once
recently had eyes retested
Forgetfulness, memory loss
poor sense of smell
Sleep disturbances- wake up every couple of hours
Anaemia- now being tested
Generalised weakness, fatigue
Breathlessness - walking up stairs or slight hill
My stomach will spasm/cramp after eating/drinking and about twice a year this is result in me blacking out. First incidence of this was in 2003, caused by drinking orange squash - stomach spasmed as soon as it entered and I blacked out from the pain. I can sometimes avoid blacking by making myself vomit. Epilepsy was ruled out and any doctor has just said "weird", but no further investigation.
I got my latest results yesterday, GP rang to say everything was normal, but I made an appointment to discuss anyway. My B12 level is 147 , possibly higher than should be due to supplement which I told my GP I had been taking. Long conversations short... He's says that's completely fine and within normal range (140-??), I said everything I've read says that's low and especially with neurological symptoms needs following up. Eventually after crying and saying I fed up of being fobbed off I got a non-urgent (1-2 weeks) follow up test for anaemia and if I want to follow up more I need to print out and take him information/guidelines that says I need investigating further. I had already shown him the NHS information that says to test for active and inactive uptake.
Any suggestion of where to go from here??
Thank you for reading!