I had a Crohn's related removal of the terminal small bowel. I was followed for a time but eventually a "primary" at the same organization saw my blood work was in the normal level and stopped the injections (1mg monthly.)
Off and on for three years I'd experienced the feeling of suffocating not just in a stuffy room but also out in the open when I felt unable to get enough oxygen from the deepest breath. Eventually this began to occur several times a day followed by some bad headaches. I didn't know whom to turn to for help when the headaches began to run all day and night.
Because of the GP's insistence, I hadn't related the disarray of symptoms with stopping B-12, until we exhausted all other options. Happily I saw an internet story linking breathlessness and headaches with B-12 anemia, I went to a clinic and resumed shots. I began at one 1000mcg a week, and after two weeks the breathlessness disappeared the headaches at five weeks. I shared this with my GP and now they resume monthly injections.
Though the breathing is fine now, I am still running out of energy in the middle of the day and I'll sleep to regain a stockpile of oxygen in my blood.
I'd like to ask if anyone knows how long this might last and what I can do to help recover from the B-12 anemia?